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I live in New Jersey

luvwolvez
0 Recommendations

I live in NJ and there is only one MD that I can find that treats Primary Immunodeficiencies. This doctor has given 6 years of the lowest level of care. I think it is because I have Medicare and Medicaid which her Group does not take but she took me as a patient but she will not take care of me in the hospital she will not care for things the disease causes and now things have gotten vary painful and serious ,as if it always wasn't and she just refered me to dr's she knew would not take medcaid and don't understand P.I.'s
I am at the end of my rope. I can barely walk. Oh I can not talk about it all. Does anyone know where I can get help?????????

Explore topics in this discussion:

Pain Lupus Allergies Mastocytosis

2 replies

2plus1not3

Try this link. There are plenty of docs in NJ that treat it.

http://www.info4pi.org/aboutPI/index.cfm?section=aboutPI&content=links

Anniewithspots

Dear Cadlee,
Would you please explain your disease? Primary Immune what??? I ask because I have been thru SO much trying to find out what was wrong with me. Lupus, MERCA, allergies, autoimmune...NO! I have Mastocytosis. Takes a skin biopsy and blood work to determine: of 'strange' brown spots which surface on the skin, no itching nor pain, hence...brown spot disease. BUT it also affects the organs, bone marrow and is debilitating. If this could put you on a better path, please contact me. Honestly...I would definitly look into another Dr. who does take your insurance.

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