Husband with mastocytosis now other rare disease

Hi, I'm new to this site and would appreciate hearing from others with mastocytosis. My husband was disgnosed with cutaneous mastocytosis about 4 years ago but started showing symptoms shortly after he returned from his second rotation to Iraq in 2003. He developed the UP rash and the military doctors just thought he had got into poison oak on our property - but of course none of the creams worked. His blood platelets also started dropping about that time too, but the doctors couldn't figure it out. When he was finally released from active duty (he was an activated reservist) and was able to go see his own dermatologist was when the biopsy was done and the diagnosis made, which of course led to a bone marrow biopsy, blood tests, etc - the whole work-up and we were told that he had cutaneous mastocytosis and also thrombocytopenia which was an immune response to the mastocytosis. He was sent to Mayo Clinic Jacksonville for a consult and put on the usual regimen; H1 and H2 blockers and gastrochrom and that was it other than seeing his hematologist every three months to check the thrombocytopenia (because his platelets continued to drop slowly but surely). Anyway all this took from 2003 until early 2006 when we finally got a good diagnosis and at that point my husband decided that he should retire because working wasn't working out - he was 58 years old at the time - so we sold our house in Florida and moved to south Georgia to be closer to one of our daughters just in case we needed help at some point, Of course doctors that aren't familar with mastocytosis are everywhere but what gets me is that here in this town they don't seem interested in learning - we are lucky that we did get a very good dermatologist (he comes out of Savannah) but our hematologist left a lot to be desired - we live about 50 miles from Savannah and have recently switched to a new hematologist from a group in Savannah but have only seen him once so far. The thing is, since we have been here he has been diagnosed with two other rare disease - besides the mastocytosis and the thrombocytopenia. The first was Langerhan's Cell histiocytosis which doctors from Sloan-Kettering (where the specimen was finally sent) say was a reaction to the mastocytosis and just recently he was having more problems and we were sent back to Mayo Jacksonville and he was diagnosed with cutaneous polyarteritis nodosa, also an immune response, also cutaneous. Now he so far has not been a shocker, still drinks 8 plus beers a day and doesn't seem to be bothered by any particular types of food. He loves tomatoes and practically everything on the "avoid" list and I'm wondering if that may be why he is coming up with all these weird other immune response rare disease - has anyone else had these experiences or know if the foods they eat may affect them in negative ways (other than a typical "allergic" response). Thanks for any help you can give me. Sherry