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Hi, i'm Nimfa, 33 years old, from Philippines. My 2 sons were diagnosed with Hunter Syndrome. There is available medicine SHIRE but I could not afford it. Please help me find donors so we could help my sons, especially the younger one, 1 yr old., to raise funds in order to buy the Shire (medicine) they needed.
You may start by contacting Shire to find funding. www.HunterPatients.com
Efagan is correct, the companies who make these medications will try very hard to help you find funding. It is important to contact them and to get treatment as soon as you can. Best of luck to you and your family!
Nimfa,
I'm a medical writer from the US and am very interested in genetic diseases. I live about an hour from Shire headquarters in the US. I've taken the liberty of contacting Shire in Singapore on you behalf to see if they have a patient assistance program in the Pacific Rim. I will be praying for your 2 sons!
Barbara Woldin
barbwoldin@comcast.net
Barbara,
Thank you very much for your help. I really pray that Shire could help my sons. Please keep me posted for any development in case you have news from Shire.
Engage & Efagan,
Thanks for the advise. It's a great help really!
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