Hi all I've posted before about my son Mik who has been sick with HSP for the past two years. We are still waiting to hear about his appeal to SS for assistance so he can get Ins for better Medical care as it is he's already acquired well over 100,00.00 in medical bills for his care. At this point it's still the purpura and Rheumatic symptoms that are causing him the greatest problems and every month it's a struggle to get the public low income clinic he goes to to get even Vicodin for pain relief. The strain and stress has been awful and exhausting as his pain is a daily reality and the monthly visits to the clinic a constant struggle, even the head physician has admitted the condition is "over his head" .
I'm writing now to say that The Discovery Health Channel contacted us and they are doing a show on Sep 1 at 8:00 on a show called Mystery ER I think. I'm not sure we don't have cable. We agreed to do it in the hopes of raising some public awareness and with the hope that maybe somewhere a Dr will see it and maybe take an interest in him and his situation. I have no idea of how they will present it, we were not allowed any say in it so I can only hope that it is factual. The two Dr's who diagnosed my son were interviewed as well as both of us.
I pray that something good will come of it.
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