Help me help this 11 yr old

ANY HELP ON THIS CHILD WOULD BE GREATLY APPRECIATED
THEY ARE GOOD FRIENDS AND AND THEY ARE BESIDE THEMSELVES TRYING TO FIND
OUT WHAT THIS KID HAS.

Hi Deb, I got as much info i could on Britney She's 11 years old. The
dr's ruled out Lupus,leukemia, Noonans disease and Turners disease so
far. Her following symptoms; 4th digit right hand is short,1st hand &
finger to show a tumor. Within the last four months, tumors began to
form on the left hand. Eye sight diminishes each year.^Squishy" spot mid
forhead.Skin is spotty.Both sides of her legs and ankles are swollen and
red-discolored. Memory loss,Trouble hearing,fatique, small mouth,
toenails turn upwards. She had Mono about 2 1/2 years ago.Epstein bar
virus levels have almost always come back elevated. Sometimes her white
cells are elevated but not always. I hope this info will get us
somewhere so this poor kid can get some help before it's to late. We all
appreciate your help and concern. Thanks Deb and give my love to Larry!
dina

Thank you for any referals you suggest for these folks .