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Hi, i just recently joined to this group but cannot find any recent entries or discussions about ectrodactyly. i would like to know if there is anyone that has this disease or has a family member with it to please contact me as this seems to be rarer than i thought. I'm expecting a beautiful little boy in january and he has been diagnosed with ectrodactyly. I've done some research on the net but talking to someone would be a greater help than reading the info, knowledge is power, but support is far more powerful. So thankyou to anyone that may be able to help me with understanding this on a emonational level.
regards bec cooper
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