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Goldenhar Syndrome

snuggles
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12 years ago my son was born still due to a cord accident but as a parent I needed to know more.. So I had an autopsy done and when the results came back one of the diagnosis was Goldenhar Syndrome the doctor said this so very rare just like the diploid/triploid mosaicism my daughter was born with this past April.And my question is is there anyone on here who has this same diagnosis or knows of a family member or close friend who has this. I would like to talk with you if so and learn more about...thank you

2 replies

Moira-anne

Snuggles,
I just read your post. Have you found out anything? How is your baby?
MA

pixieeemoon

Hello Snuggles -

I just happened to read your post. I was born with the Goldenhar Syndrome. I thought maybe you might need some questions about the syndrome? Feel free to ask me about the syndrome. I would gladly help. :-)

Pixieeemoon ~

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