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I wanted to know it anyone is familiar with fetal hydrops pr hydrops fetalis. if anyone knows anything about this please let me know.
I wanted to know it anyone is familiar with fetal hydrops pr hydrops fetalis. if anyone knows anything about this please let me know.
Here are three stories about hydrops babies.
http://hygen.net/hydrops%2Dfetalis/viewforum.php?f=3&sid=e9c46d346269d1cda6 93519929e65120
Here is the main page:
http://www.hygen.net/hydrops-fetalis/index.php
Hope this helps.
my son died of non-immune hydrops on May 26th after living for only a day. Any help I could be to you please let me know- I know much more about hydrops then I ever wanted to know.
my daughter was born on june 25th08 with nonimmune fetal hydrops at 33 weeks gestation she is now three months old and is struggling with feedings and digestion iam looking for anyone with any help or advice
First of all how is your daughter doing?
My name is Leighann
If I can be of any help let me know. I dont have much information on living with hydrops. My daughter only survived 5 weeks and she passed away 10 years ago. I dont want to get you any more upset then I am sure you are already with my story. I am currently in nursing school ( a desire that started when my daughter was sick) and with my teacher I am doing my own research on hydrops and would be glad to help you. Someone sent me some links that I havent even looked at yet but I will send them to you.
http://www.hygen.net/hydrops-fetalis/index.php
http://hygen.net/hydrops%2Dfetalis/viewforum.php?f=3&sid=e9c46d346269d1cda6 93519929e65120
Let me know how you make out and take care. If nothing else I can listen because I how how you feel.
iam sorry about your daughter that hurts me to hear that it really does i cant imagine actually losing your child. they told me so many times my daughter Madalyn was not going to make it. When she was born the nicu asked me if i was going to name her.
at my 20 week ultrasound there was no sign of any problems at 28 weeks i started with severe back pain i thought i was in labor --i wasnt they gave me pain meds and sent me home never did an ultrasound. Five weeks later i went into early labor when they did the ultrasound to see how small she was they found she was about 10 pounds full of fluid,then diagnosing her with fetal hydrops.
i have been looking 4 someone to talk to on what to expect, if her behavior now is normal for her condition you wouldnt believe how many doctors and nurses have told me they honestly dont know much about hydrops i have been looking for some kind of support group of parents with babies born with hydrops i have had no luck i desperatly need someone to talk too.
--my daugher is a beautiful baby now up to 10 pounds!! she struggles with feedings she stops and cries while she is feeding she is on medicine for gerd, which helped a little she is not a big eater sometimes going 8 hrs between feedings somenites she cries for 3 hours straight unconsolable. 2 days ago her labia area swelled up suddenly with fluid it is more than double the size i took her to her pediatrician who said it might be a female hernia but couldnt make a diagnosis they refered her to a surgical specialist which cant see her till oct 15th, ughh!!
Hi I am new to this so hope I am doing it right. I am 27, married with 2 kids. I am 13 weeks preg and had my 1st scan last week and was told there was a nuchal fold of 6.5mm which is v high. Went for a more detailed scan yest and swelling has increased to 9.4mm and baby now has hydrops. We are completely devasted. Carrie I was reading your story and completely feel for you. I feel we have no hope whatsoever as it has been detected so early on. My consultant told us he reckons we are watching a miscarriage unfold before our eyes. I am back in next tue for another scan to monitor swelling although now that fluid is inside baby I feel there is no happy ending here. I was going to get a CVS this week but have opted for an Amnio, the doc explained that if results came back that there is no chromosome defiecency and it is in fact a healthy baby then we will only blame ourselves if I miscarry after test. I almost feel this is the Docs way of telling us not to get CVS as the inevitiable is going to happen anyway, regardless if we get this invasive procedure or not. Does anyone have any stories where hydrops was found this early on but have positive outcomes...? Pls, pls let me know....and thankyou in advance for sharing your personal stories. Also, carrie how are things with you..?
hi there, well i had a CVS and the results came back it was a little girl with Turners Syndrome. The doc wanted me to go in that day to discuss everything although when I had a scan, her wee heart had stopped beating. I'd only had a scan a few days earlier where her heart was very strong but the fluid in her chest must have been too much for the little one. It was an awful time and last week I had to be induced. She looked absolutely perfect but you could see where things had started to go wrong.
How is your little Madalyn?
iam so sorry to hear of your baby girl my heart hurts for you my Madalyn is good, thanks for asking. My doctor told me the chances of her survival relied on how early on the hydrops developed because the earlier they develop the more they disrupt organ formation/growth. rosebud iam wondering how the research is going?
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