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Does anyone know anything about Fahr's Disease, and what would be the course of treatment for it. From all I have read there is no cure, but that it can be treated. Can anyone give me some
information on it. Thanks, Wilma
there is no cure for fahr's disease. and they can only treat the symptoms and most treatment is for the dementia side. Paula
My father was recently diognosed with FIBGC (Fahr's). I have researched this extensively, this is my summary: Through networking on the internet, I've concluded there is far more than 30 families described with this syndrome. The risk of passing Fahr's on to your offspring is 50%, male or female. Basically, I describe Fahr's as a "slowing down" --- your motor skills and cognitive abilities slow down.
There is no cure. Only genetic research.
Sounds gloomy, but it is what it is. Remember,
Life's Short, Live Hard, Play Hard -- Everyday.
The glass is half full.
hello are you still on this site would you like to talk husband has fahrs kellyjoe
Hello. My name is Wade and I am new to this site. I was diagnosed with Fahr's Disease in April of this year. I am a 49 year old African American male.
I've had psychiatic issues in the past, but nothing was related to this. I started complaining of severe headaches difficulties with my memory and no one could find the cause...they thought I was "malingering". Finally, after I became a pest, my doctor referred me to a neurologist that performed a CT Scan. She informed me that there was calcification in my brain but "that was normal for someone my age."
I had to seek a second opinion before the diagnosis was rendered.
I am being treated symtomatically for the headaches (which sometimes are so severe I can't get out of bed). I could no longer perform my full time job.
Now I only work 10 hours a week and I can't file for any type of social security benefits because I'm still able to work.
Does anyone have any information regarding trials or any alternative treatments? I have been told that there is no treatment for this.
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