Fabrazyme shortage for Fabry disease

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Fabrazyme shortage for Fabry disease

By Jerry_at_NFDF
Posted September 22, 2009 at 5:54 am · 0 replies
In How my disease has changed my life
Shared with the public
Edited September 23, 2009 at 9:41 am

Tonight, there is a second Town Hall with Genzyme, the NFDF, FSIG, and the Fabry community about the shortage of Fabrazyme for treatment of Fabry disease.

To participate, please call in on Wednesday, September 23, 2009.
Time: 5:00 - 6:00 PM (EST)
US Toll Free: 1-800-593-9988
US Toll: 1-212-547-0203
Passcode: Fabry

You may provide questions in advance to Jerry at jerry.walter@TheNFDF.org or ask them at the Town Hall.

For more information, please call Jerry at 1-800-651-9131 or write to the email above. Thanks

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