( ECCL)

Head, Neck, Spine, Hearing, Limbs, Ectra it is very rare as I am one of Forty in the Nation and at the time
that I was rediognosed twenty- six yrs., ago I was one
of five and the only female I was rediogned by Dr. Vicent Riccardi and Dr. Marvin Fishmen for whom is the founder of this disease but since he has retired and Dr. Riccardi had to go back into NF Research full time, my mom, i, and my older sister hve had trouble finding anyone that knows of my disease and for whom can take care of me, so if anyone can get in touch with Dr. Riccardi please et him know that we nned his help as he needed ours so often plus we miss hearing from him as it's now been fifteen in a half yrs., the lst time that he called and asked us for help but haven't heard a word since then.............

Sincerly yours,
Michelle Moon( Shelly)