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Brain, Stomach, Limbs, Eyes ectra does anyone in the group happen to know of a doctor or doctors that
are here in The United States that know of My Rare Disease but need someone to be used as there Ginny Pig as now that I'm grown we haven't found anyone but one Young German Doctor that is reseach for whom we have been in cotact with but we haven't found any Neurolgist, or Other Neuro Specialist and I
need help as things have gotten worse with age, we've been online forever and still haven't found anyone so if anyone can help us we would most eperaciate it.......
Love, your
Friend Shelly.....................
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