I was told I had Gitelman syndrome back in 2003. I was very sick potassium was at 1.7 and no one new why? It took the Doctors month then I was told. At the same time my wrist always hurt they said it was from the potassium being so low so I believed them. I still had pain the whole time when in 2005 when I could not use my wrist at all. I went to one doctor who said it was bad sprain. A few days I could not take it so went to ER Doctor took xray his mouth was open he called another doctor over and they said I need to go specialist. I did 2 days later. That Doctor said I had Kienbock disease? I need to get blood back to bone in my wrist so I did what they said. Now more is going on with my health and I can not get any Doctor to look at the whole body. There answer is it has nothing to do with that. But they also so do not no what GS or KD is. If anyone has one or both I would love to hear from you.
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Does anyone have Gitelman syndrome and/or Kienbock disease
- By lct25help
- Posted September 29, 2009 at 9:44 pm · 1 reply
- In Getting a diagnosis
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- By NORDGeneticCounselor
- Posted September 30, 2009 at 11:14 am
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The following links provide information about these conditions that may be helpful:
http://barttersite.org/what-is-gitelmans-syndrome/
http://orthoinfo.aaos.org/topic.cfm?topic=A00017
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