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My name is Shannon. I have a disease called Devics. It is an autoimune disease. It started with the lose of sight in my right eye. I was not treated fast enough so it caused perm damage. It is a disease very much like MS, but is a little different. It causes paralisis and in my case brain lesions. It is a very bad disease. If you have this or no of anyone e-mail me.
Hello shugtucs,
NORD has a report on Devic's disease that you may find helpful. If you'd like to receive a copy, please email me at rn@rarediseases.org. Please include your postal mailing address, as we will send it to you by postal mail.
As an FYI, the disorder is more frequently referred to in the medical community as neuromyelitis optica.
A good support group where you can network with others, in addition to this online community, is called Devic's Support Group-- http://groups.google.com/group/Devics-support?pli=1.
I wish you the best of luck!
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