I was Diagnosed in 2006 with this illness and have had a tough time. I was sent home from hospital on several occasions because it was 'a stomach bug'.
I continued being sick and going into what is called a 'conscious coma'. My temprature was never taken at home but i usually felt hot.
After being sent home a couple of times we decided i couldnt have a stomach bug EVERY time. we refused to leave without them finding what was wrong with me. I was kept in and put on IV fluids, Anti-sickness meds and pain meds. I was discharged a week later when my health went back completely normal. This is what happened nearly every time i had a attack.
In 2006 i was diagnosed with CVS when ECG's,EEG's,MRI's, X-rays's,Ultrasounds,Bloods,Urine and a Barium meal come back normal. At first we were happy to have a name for this illness but that was only the beginning of our worries.
We was going into hospital if we couldnt manage at home but each time i went in the harder it was to get IV access. I went in and out of comas and my heart rate was always fast. My temprature was always slightly high and i never responded to meds given except sedation.
Late last year the Drs. thought there was somthing more seriouse wrong with me because i was never getting better. They booked me to have a endoscapy done which came back normal and i also went to see a nuero Dr. which didnt help. I have just managed to break a cycle that was happening every 4 days for 5-6 days.
So far having CVS hasnt become more easyer to handle and im rarely well enough to enjoy the time. Further tests have come back normal and IV access has become virtually impossible. We are seeing a Dr. now about having a port placed but we are not getting anywhere fast.
What i really want is someone that can relate to my story that can offer advice on coping with this illness.
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