Hello. I was diagnosed with cyclical neutropenia 3 years ago with no family history of it. I am now 19 years old. I feel like this illness rules my life and that there is nothing I can do to change it. I have been taking the injections but I feel like I have been sentenced to lifetime of managing something that seemingly came out of the blue. It makes me very sad a lot of the time because I know that I will never be able to do many of the things that I have dreamed of (such as extended backpacking trips where I would not be able to refrigerate the medication.) It just gets me very down sometimes and I wonder why this had to happen. Sometimes I do not take my injections because I am so frustrated but then I just get the symptoms that come along with the low blood counts. I keep hoping for a cure (preferably holistically) but have not found one. I just feel very alone with this and I was wondering if anyone else ever felt this way. Thanks!
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