My son was diagnosed at birth. I immediately applied for disability for him. It took 30 days before I could get an appointment with Social security disability. After 4 months my request was denied. Apparently sacral agenesis, club feet and incontinence of bladder and bowel are completely normal limitations. I asked for a reconsideration, and after an additional three months was again denied. According to "their doctors" my son has normal limitations. This I find odd, considering none of my specialist can tell me anything about this disability other then " its a learning experience, that we must take one day at a time considering it's so rare and they know next to nothing about future difficulties". So once again I requested the next step in this process A hearing... Now, in this process I have to take my case to the nearest large city. In this case Charlotte, NC. Here's the fun part. It takes 2 years to get a hearing!!!. Well I think they do this to discourage legitimate cases. I'm not going away though. It's been a year this month, and I'm still waiting for my appointment date, haven't heard anything and don't expect to for at least another 10 months. I feel discouraged that even though my husband has paid into social security for the last 16 years for people with legitimate claims they are more often then not denied from the start. I often wonder what is normal limitations, and how can you define each individual under such a broad scope?
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