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I would like to hear from anyone diagnosed with RSD/CRPS. I don't know much about it's treatment and disabilities that the disease causes.
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Anyone know anything about RSD?
- By tmichaelroche
- Posted September 13, 2009 at 2:03 pm · 2 replies
- In Finding emotional support
- Shared with the public
- Edited September 13, 2009 at 3:06 pm
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- By dwyerja
- Posted September 14, 2009 at 9:47 am
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Here is the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) website - it has some great information - - - http://rsdsa.org/index2.html.
As for the treatment - there are a TON of different ways to go for treatment - because they don't know really why this happens, they don't have a definite treatment.
Physical therapy is a big one, you don't want to lose use of the limb(s) affected. Then oral medications - and there is a huge variety - antidepressants, antiinflammatory, anti-seizure, calcium channel blockers, muscle relaxants, specific pain meds - ultram, narcotics. Topical things have been tried - Capsacin, Lidoderm patch.
Then you can get to the more involved - epidural injections/infusions, I have heard of lidocaine infusions, and the various levels of ketamine infusions - outpatient, inpatient, & coma.
I am sure that there are more than I can think of here and I have tried many of these so if you have further questions let me know.
- By NORDGeneticCounselor
- Posted September 14, 2009 at 9:48 am
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The following organization is a good resource for information and support for RDS/CRPS:
http://www.rsds.org/2/what_is_rsd_crps/index.html
Please contact orphan@rarediseases.org if you would like to request the NORD report on this condition.
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