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advice on deaf-blind help

teadrinker
0 Recommendations

My daughter has a genetic abnormaility that is robbing her of both sight and sound. So far I have not been able to find help on how to communicate with her - she has just a little left. She will lose even that and I'm trying to set in motion habits that will help along the way as well as when both are lost.. My frustration is that lost sight people want to teach her how to live by sound and lost sound people want to help her live by sight. HOW do I communicate with her when she is losing/has lost both? How can she communicate with me? How can she do normal things? So far our doctors have no ideas to steering us to help. Any books or articles or . . . HELP!

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Amyloidosis

7 replies

LC

If you have the time, try the site deafblind and the A-Z section, then the archives section for several resource sites that may be helpful to you and your daughter's situation. Also, dont be hesitant about contacting your congressional representative and asking for assistance with your request. Repeatedly if necessarily.Some school systems have good resource persons too. There will be others who monitor NORD that Im sure have much more effective suggestions for you, continue to monitor this . Also, dont forget that the stres can be difficult for yourself and if beneficial get involved in a support group for caregivers, even if its only going once or twice to vent or pick up some good tips. But watch this site for more feedback from other more knowledgable responders soon. Hope this is of some use.

BBMc2312

I don't know where you live, but it might be worth your while to check out the Helen Keller School at the Alabama Institute for the Deaf and Blind in Talledaga, Alabama. Here is a link to their website:
http://www.aidb.org/Helen+Keller+School+of+Alabama.aspx?Page=ab1f3bd7- 7cb9-4883-b65b-02dd6760276d

Best wishes,
Bonnie McElroy

teadrinker

LC, thank you. I have checked A-Z and there is one organization in my state that might help. I appreciate your idea.

teadrinker

Bonnie, thanks. But the schools will no longer help-my daughter graduated some time ago. And when I contacted Helen Keller Inst. they told me my daughter wasn't bad enough to help yet. Thanks!

Muriel

http://www.lowvision.org/deaf_blind_information.htm

Found the above link.
Good Luck and God Bless,
Muriel
Amyloidosis Support Groups Inc.
ASG www.amyloidosissupport.com

lilrosa

There is the helen keller but there is also a place that is called the gentry center its there next to helen keller school. they help people that are to old for the blind and deaf . I have a blind daugter and that is how I know about the gentry center in talladega al. I had her there at one time but she has a mental problem and other problems. so I had to take her out.I have a grandson 16 months that is deaf and impaired eye sight plus other problems.

lilrosa

signingtime.com is a good place to learn sign langauge.helen kellar was deaf and blind.in the movie that is what she was taught. which you may have found out what you need to know

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