5 month old with Hirschsprung's

• By BBMc2312
• Posted June 14, 2008 at 3:17 am
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Does Logan still have his ostomy or has he had his pullthrough surgery? How much of his colon was/is affected by the HD?

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• By LogansGrammy
• Posted June 14, 2008 at 5:25 am
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He hasn't had either yet. There is about a 4 inch segment of his colon involved. We are digitally stimulating him to help with his bowel movements. He was a preemie and they are trying to wait until he weighs at last 15 lbs. He was on his way to that at 12.5 lbs when he got a virus and lost 2 lbs. Shortly after he got over the virus, the watery stools developed. Dr. Suson put him on Pedialyte plus formula, at a ratio of half to half totalling 4 ozs. every 3-4 hour feeding, trying to let his colon rest and get back to normal stools and just maintain his weight until his stools aren't watery. Then we can feed him normally again. Logan is used to 7-8 ozs per feeding. He is constantly crying because he wants more.

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• By LorettaQ
• Posted June 14, 2008 at 9:57 am
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I am no doctor, but that does not right. I do agree with the regular feeding on a schedule. It is important that the body be on a regular sleep/eating pattern for optimal health.

My son had the same type of thing with just a few inches, but our surgeon was adamant about a colostomy first, then getting him to 20 pounds for the pull-through.

I used a program for Owen I was referred to by www.gfi.org - Preparation for Parenting and Baby transitions. I actually used it for all of my kids, but it was a God send for a kid with "issues".

Owen THRIVED after his colostomy and had his operation when he was just 4 months old as he weighed 20 pounds at that time - mostly all on breast milk. The surgeon could not believe it he was expecting to see us at 12 months and said Owen was the youngest one he performed the operation on.

Go with your gut/heart moms, that is why we have it. Get a second opinion, there are lots of different ideas. For example, the other doctors all commented that our surgeon was the most conservative, but it worked! Feel free to contact me if you want to talk more.

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• By TuffGuysDad
• Posted June 14, 2008 at 8:44 pm
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My son is going to be 3 on June 19th. He had the ostomy at 2 months, and pull through at 6 months. He has *never* in his life had a formed stool. They have always been soft, and his surgeons and GI docs don't seem to think that's a problem...but I have to wonder.

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• By shan789
• Posted August 20, 2008 at 12:49 am
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My son had a colostomy at 2 days old, pullthrough at 11 months. He never had regular bowel movements. Of course he had chronic constipation. He was on laxatives from the time he was 3 yrs. old, until 8 weeks ago, he is now 12 yrs. old. They quit working and now has a cecostomy. While flushing through the cecostomy his bowel movements are watery and not formed. He seems a lot hungrier. I would get a second opinion. Does he see a GI yet? Does the Dr. really know about HD?
Shannon

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• By LogansGrammy
• Posted August 20, 2008 at 1:01 am
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Yes, Logan has a good doctor. We have also been in touch with Cincinatti Children's Hospital and received a lot of info from them. At 7 months now, he weighs 13 lbs 3 ozs. His Dr. is waiting till he hits 15 lbs to do what he hopes will be a pull through. Logan is doing well with us digitally stimulating him for bowel movements. He just doesn't gain weight very quickly although solid foods are helping with that now. In fact he is doing so well I'm almost afraid for him to have the surgery. Stimulating him is really not that bad and I don't know what to expect after his surgery. Cincinatti Children's is sending us info about the different surgeries and what to expect so we are anxious to get that.

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