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I am looking to connect with other 3MCC parents whose children have had a metabolic crisis. My daughter was hospitalized last winter.
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3MCC child
- By CRowan
- Posted September 10, 2009 at 10:04 pm · 6 replies
- In Finding emotional support
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- By oaanews
- Posted September 11, 2009 at 7:42 am
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Hi -- The Organic Acidemia Association is a parent support group that includes the disorder 3-MCC. We have parents whose children has 3-MCC who are members of our organization and invite you to check us out at www.oaanews.org. We also have an Inspire group here - as well as a Google Group. You would be able to connect with other 3-MCC families through OAA....we welcome you.
Kathy Stagni
Administrative Director
OAA
- By GrandmaPat
- Posted September 11, 2009 at 12:20 pm
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Hello,
My darling granddaughter has Methylmalonic acidemia (MMA) with homocystinuria -- a very long word for such a small baby, she just turned one. I have a hard enough time trying to gain information on MMA, so I am uncertain what 3MCC is about, but I do realize it is a metabolic disease. Is your daughter still in the hospital?
Kind regards,
Grandma Pat
- By jkilla187
- Posted October 5, 2009 at 12:02 pm
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My daughter is 5 years old and has 3mcc.
She has been hospitalized at least once a year when she becomes sick and goes into metabolic crisis.
- By CRowan
- Posted October 5, 2009 at 4:57 pm
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Do you get any kind of warning signs before she goes into crisis? When my daughter had hers there was no sign that she was heading for trouble. I remember thinking the night before that she might be getting a cold and then the next morning she was floppy and lifeless - so scary. And yet she has had full on bronchitis, even a stomach virus without going into crisis!
- By jkilla187
- Posted November 3, 2009 at 8:26 am
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She always either had a fever or had thrown up more than 3 times in 24 hour period. So we were advised by our doctor to bring her to the emergency room whenever she has a fever for over 24 hours or gets sick more than 3 times.
- By janny1
- Posted November 5, 2009 at 3:20 pm
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sorry to hear about your daughter. my son has 3mcc and is 8 months old. he hasnt had any problems yet, fingers crossed. but if you want to chat with someone or need anything let me know.
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