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Bladder retention and Tarlov Cyst
- By Ayche · New reply 5:24 pm
- Discussion in Finding a doctor · 1 reply
- Hi, sorry for starting another topic on Tarlov Cyst, but I was wondering how many people who suffer with TCs have their main problem being bladder rentention? While I do have back and nerve pain, to me ...
MY PARTNER HAS WALKED AWAY FROM ME....
- By sonia40 · New reply 5:14 pm
- Journal · 92 replies
- Hello all just wanting to vent off a little....my partner of 6 yrs has finally packed his bags and walked away...leaving me with my 3 children and our 2 children together...his excuse??? well he couldnt ...
Second Attempt Tarlov Cyst Surgery
- By Stephanie3084 · New reply 5:08 pm
- Discussion in How my disease has changed my life · 19 replies
- I am new here, so I'm not sure where to start. To make a long story short, I am a 43 year old woman who was diagnosed with a very large Tarlov cyst (about the size of a lemon) in my sacral spine in July ...
SomeTimes I just dont know what to do anymore
- By ButterFlyGirl86 · New reply 5:06 pm
- Journal · 2 replies
- I have been thinking alot about why things happen and I know that things happen for a reason we just dont know why it happens at the time. But I would love to know why now. I am only 23 and happly married ...
HSP
- By terryc · New reply 5:02 pm
- Journal · 15 replies
- HELLO, I HAVE HAD HSP FOR 10 YEARS NOW ONE OF MY MAIN PROBLEMS ARE THE JOINT PAINS, I CAN NOT SEEM TO GET ANYWHERE WITH THE DOCTORS I SEE, DOES ANYBODY ELSE HAVE HSP IF SO CAN THEY GIVE ME ANY INFORMATION ...
Just Diagnosed with Small Fiber Neuropathy
- By goofygoldens · New reply 4:28 pm
- Discussion in Getting a diagnosis · 2 replies
- I have just been diagnosed with Small Fiber Neuropathy which I thought was a symptom or a result of another disease but was informed last week that it is a disease in and of itself. Yet it would have ...
Bad Storm on its way here
- By ButterFlyGirl86 · New reply 2:31 pm
- Journal · 19 replies
- They are telling me that we are going to being 7 to 8ins of snow tonight and up to sun i just hope its not like it was like last year here, we had now power and water nothing for a week, it was bad. but ...
Busy times... As usual.
- By Adventure_Girl · New reply 1:31 pm
- Journal · 15 replies
- This morning my diatician came over to drop of a box of new formula (Peptamin 1.5) because my other formula (Isosource 1.5) is causing problems. I am having extremely slow gastric emptying, which is not ...
Quick update for those wondering why I haven't answered
- By spiritlove · New reply 12:49 pm
- Journal · 25 replies
- Been feeling poorly recently. Monday felt rather large lump in groin area, didn't hurt so decided to wait for dr. appt. Thursday. Word of advice, if it's a LUMP (!) DON"T WAIT! Started hurting Wednesday ...
I died on January 12 2010
- By Tinman · New reply 12:14 pm
- Journal · 12 replies
- Hello all my friends who, like me often live with the unknown and fear it. I did die on the date stated. It was beautiful, gentle, sweet, loving, warm, non-judge mental, soft, quiet, no pain, no emotional ...
How many have been operated on from Dr. Frank in Kansas City
- By ycul · New reply 9:47 am
- Discussion in Finding a doctor · 1 reply
- Would love to hear from people operated on from Dr. Frank F. in Kansas City. Would also like to know how bad to your symptoms get. Right now I have had symptoms for five years but misdiagnoised ...
INdolent Systemic Mastocytosis
- By SpottedinAlbany · New reply 8:04 am
- Discussion in How my disease has changed my life · 1 reply
- I have Indolent systemic mastocytosis x 10 years of symptoms with 4 yrs of treatment. I wonder, has any out there experienced bone pain? I'm having some deep, pain in the pelvis, and right thigh that ...
Tarlov Cysts
- By berniea · New reply 3:32 am
- Journal · 12 replies
- I had a MRI in December which showed 2 cysts on my tail bone and thought great after 2 years of pain and thinking that I am going crazy there is an answer only to be told by the neurosurgeon that Tarlov ...
At the end of my rope:(
- By Hopeful11 · New reply 12:54 am
- Discussion in Finding emotional support · 22 replies
- This month marks 7 years that I've been undiagnosed. My depression began a little over a year ago but never bothered me mentally or physically until about 6 months ago. No one around me understands what ...
Conn's Syndrome and Kidney pain
- By nikki_G · New reply 12:23 am
- Discussion in How my disease has changed my life · 32 replies
- I was wondering if anyone one else with Conn's syndrome gets extreme kidney and flank pain. I have regular bouts of extreme pain and spend quite a bit of time in hospital but the doctors here do not know ...
Connective tissue with lung problems
- By Quacky · New reply yesterday at 11:37 pm
- Journal · 1 reply
- Just a update. My son was suspose to have surgery in February. They called and said they couldnt do it until he was cleared from his lung doctor. His lungs have not been doing well lately. He had to go ...
Panhypopituitarism
- By jackfwms · New reply yesterday at 7:28 pm
- Journal · 23 replies
- I've had this condition since 1988. The result of a brain injury. It feels as if my brain is slowly dying. I have no idea what to expect next. In Feb. 2009 I was diagnosed with type 2 diabetes. I'm taking ...
Is there anyone that has had nerve damage and has healed from it???
- By hills24 · New reply yesterday at 4:46 pm
- Journal · 17 replies
- Does nerve damage every really heal or is nerve damage truely permanent ...
lipoma follw-up w/ DR 2day
- By shecan06 · New reply yesterday at 3:43 pm
- Discussion in My disease has no treatment · 9 replies
- HI, sorry I've not been at my desk as often, since the lumbar area lipomas were removed. Today I have my follow-up appointment with the surgeon. I would love to hear from others who've had lipomas removed ...
Symptoms: Tarlov cyst(s)
- By oneilpcb · New reply yesterday at 1:56 pm
- Discussion in How my disease has changed my life · 38 replies
- I am a 56 year old very frustrated female. I am a mother of 3, including a son, who is a physician in residency who says Tarlov cysts are asymptomatic. When I read about other sufferers from Tarlov cysts ...
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The NORD Rare Disease Support Community connects patients, families, friends and caregivers for support and inspiration. The NORD Rare Disease Support Community is sponsored by the National Organization for Rare Disorders in partnership with Inspire.