Sibling issues

Chronic illness can create issues among siblings. Discuss your family's experience and share your suggestions.

Discussions

tietze syndrome

• By Jordy95 · New reply January 8, 2013
• 1 reply
• So my 15 year old sister was diagnosed with Tietze syndrome about a year ago she was in and out of hospitals and doctors didnt even know what to diagnose her with and they thought she was faking it so ...

My little brother has Melas</3

• By jay0811 · Posted September 17, 2012
• 0 replies
• hi, well i was wonderign if there is anyone i could talk to so i understand melas more. I have an 8 yrs old brother with Melas and i want to understand more of what he feels and what my family and I can ...

Tarlov Cyst, are they hereditary?

• By pcyst2011 · Posted December 24, 2011
• 0 replies
• I have a 2 cm tarlov cyst in my spine at s2 and hopefully am having surgery this summer with Dr F from KC. I found out my brother may have cysts in his spine also but he has not been diagnosed yet. He ...

familial mediterranean fever and colcrys

• By DianaGee · New reply October 15, 2011
• 3 replies
• My sister and I both have FMF and have been switched from colchicine to colcrys. We both suspect the colcrys does not work like colchicine. Has anyone had the same experience? We would like to get back ...

cerebral vasculitis

• By bowman · Posted August 30, 2011
• 0 replies
• i have just read lots of post from people with cerebral vasculitis and first of all have to say how brave you all are. my sister has recently been diagnosed after millions of tests and a lot of time in ...

not close to step siblings

• By indianagirl91 · Posted July 19, 2011
• 0 replies
• I have 3 step brothers and 1 step sister now since I was 13 years old. my one brother and I are sort of close we talk and spend time together. I have not seen my oldest brother since christmas 2009. I ...

Stiff man syndrom

• By mela_2u · New reply June 19, 2011
• 6 replies
• Hello, my sister has stiff man syndrome, and has reached a stage where every week you have to call an ambulance and not solve anything. We are desperate because we can not help, I ask you, to you as it ...

my other child

• By lightathend · New reply April 22, 2011
• 4 replies
• Hi I am new to inspire but have a question. My 2 yr old requires constant care and his 3 yr old sissy is often feeling neglected, we try our best to let her help (getting diapers, snuggling to comfort ...

Family Conns

• By Maureen33 · New reply February 26, 2011
• 1 reply
• Hi first time on this web site fortunately i have been diagnosed and received treatment for conns. I have had an opp to remover tumor last Oct but now I have low blood pressure which is a bit of a pain ...

Caudal Regression Syndrome and Crohn's Disease

• By BoomerBetty · New reply January 1, 2011
• 1 reply
• My brother, Mark born in 1959 with caudal regression syndrome (severe case), legs are short, bent at knees in frozen position and are of definite smaller size. No bathroom control. Wheelchair is his mode ...

CPPD

• By maddshaz · New reply July 2, 2010
• 1 reply
• HI DO ANY OF YOU KNOW ABOUT THE CHANCES OF MY OFF SPRING HAVING THIS I DID FIND ONE WEBSITE THAT SAID THEY HAD A 50% CHANCE ...

Identical Twins Piebaldism

• By Silverfox · New reply June 2, 2010
• 1 reply
• Does anyone else out there have in their lineage identical twins... One that has piebaldism dominantly (shows visual signs of piebaldism) while the other identical twin has piebaldism recessively (shows ...

Ocular Motor Apraxia

• By French-mum · New reply May 26, 2010
• 44 replies
• Hello, my son who is now 6 months old was recently diagnosed with ocular motor apraxia. He sees perfectly well but can not follow moving objetcs with his eyes. In order to follow them, he has to move ...

chronic illness

• By chowmein2 · New reply April 6, 2010
• 5 replies
• Just want to air my frustration... I have cerebral vasculitis/Major depression/Seizure disorder. You'd think after 20+ years of seeing doctors weekly that your brothers and sisters would believe that ...

GSS

• By Karla777 · New reply December 28, 2009
• 1 reply
• Would like any information about GSS or Gerstmann-Straussler-Sheinker Disease. This has been misdiagnosed in my husbands family in all previous generations until now it was diagnosed in my husbands sister ...

Finding help for my sister......

• By logcabin57 · New reply October 15, 2009
• 7 replies
• I have read the different nightmare stories on this debiliating ailment . My sister is in severe pain with her Tarlov Cyst . She got bit by a tick and had Rocky Mt. Spotted Fever over 5 years ago and ...

Stiffman sindrom

• By mela_2u · New reply August 19, 2009
• 18 replies
• hy, im from Romania and my sister (35 years) has been diagnosed with stiffman sindrom a few day ago, after 7 years of mistake diagnose, and i have a million on questions...is this disease progressing ...

Schilder's Disease

• By Novice911 · New reply October 24, 2008
• 4 replies
• Has anyone heard of Schilder's Disease? I've had 3 brothers (approximately 2 years of age) die from this and would like any information at all (especially genetic information). I am very concerned about ...

Relationship

• By ShyGirl (Inactive) · New reply October 24, 2007
• 3 replies
• Hi it seems that the general society calls us all kinds of 1 names, 2 gossipsabout us, 3 discriminates against us, 4 rejects us and 5 puts us under one category. Has anyone had or have a serious relationship ...

Preimplantation Genetic Diagnosis

• By Dana3 · Posted October 4, 2006
• 0 replies
• Has anyone with a child that has a rare inherited disease tried PGD (Preimplantation Genetic Diagnosis) I've been reading up on it , there is also a new techniqe called PGH where they check for 600 diseases ...