My child and school

Is your child's school district supportive? Discuss your experiences, and share tips on how to partner effectively.

Discussions

Weekly Tip #4: Camps for Kids with Special Needs

• By sromesgene · Posted May 14, 2013
• 0 replies
• What is your child doing this summer? Across the US, camps offer an opportunity to learn new skills, meet new people, and experience new adventures. Several organizations provide lists of camps for children ...

mastocytosis in the army

• By glenman · New reply May 7, 2013
• 2 replies
• my son wants to enter tha army national gaurd, he has had mastocytosis since he was 6 months old, he is now 22, does anyone know if this disease will keep him from entering the service ...

Schools that label Mom the problem with sick children

• By Liannemg · New reply April 17, 2013
• 9 replies
• My daughter is about to turn 15, my son is 10. When they were infants they started getting chronic sinus infections. My son was 6 weeks old when he had his first one. My daughter about 6 months & she ...

Genetic Alliance Weekly Tip #3: Children & Youth w/Special Healthcare Needs

• By GA_Alyson · Posted April 2, 2013
• 0 replies
• Every decade, the U.S. Department of Health and Human Services publishes Healthy People, a document that provides science-based, 10-year national objectives for improving the health of all Americans ...

18p monosomy

• By jm0m · New reply February 22, 2013
• 2 replies
• My child has what the school labels melt downs when it comes to writing 'He throws chairs school supplies is restrained and then they call for me to pick him up. We dont have this behavior at home , there ...

Hereditary Spherocytosis

• By csmp · New reply January 18, 2013
• 1 reply
• My grandchild with HS gets sick a little more than other children. We don't take her to the doctor unless she has a symptom that is uncontrollable with OTC meds. The school has lost her notes and wanted ...

Piebaldism

• By socalfemale · New reply November 12, 2012
• 8 replies
• Hello, my son and I both have piebaldism, I am the youngerst of 4 siblings and I am the only one who has it. My son is my only child and he has it, when I was a kid in school I was teased very badly ...

Olliers

• By Antiny · Posted October 4, 2012
• 0 replies
• My son was diagnosed with olliers at the age of 6 mo. Last yr in Aug 2011 at the age of 10, he had surgery in his right hand at the Scottish Rite Hospital for children in Dallas, TX. After surgery, his ...

Childhood Uveitis Symposium

• By uveitisguy · Posted August 4, 2012
• 0 replies
• http://www.uveitis.org/calendar/view/yea r/m/8/d/4/y/2012/v/list/c/conference this conference is for parents and kids with Ocular inflammatory disease using state of the art treatment algorithms. kids ...

hirschsprungs

• By bamafan890 · Posted May 28, 2012
• 0 replies
• my son justin is 2 1/2 and has total colonic hischsprungs disease. we are rying to get him on a diet that will decreas his spouts of diarreah. he is eating normal foods but drinks neocat jr. we are tring ...

Dysautonomic

• By grahamson68 · New reply May 8, 2012
• 3 replies
• My 13 yr. old son was recently diagnosed with Dysautonomia. I need to know if he qualifies for an IEP or a 504. Some days he is great and has very few issues, other days he can't do anything due to headaches ...

xxy47 and its affects

• By gingermummy · Posted April 20, 2012
• 0 replies
• I just been told my 4 year old has this but his symptoms arent showing expect for delay in speech and some behavior problems. He is very small and under weight but this is not normal for this syndrome ...

Plasminogen Deficency

• By esor · Posted January 13, 2012
• 0 replies
• I'm still trying to find anyone who has a child with this condition who can help us prepare for the future. Has anyone heard of this condition. Does anyone know what we can expect to deal with. What medical ...

help

• By familyalegria · Posted January 9, 2012
• 0 replies
• My child is 9 and she has (PLEVA_FUMHD). I dont know what to do. she cant take half of the meds and where we live they don't have light therpy for her. the only other thing is chemo meds, but she only ...

Help with treatment

• By Mags1666 · New reply December 14, 2011
• 1 reply
• I have a 17 year old daughter who has been in pain for over three years. She was finally diagnosed with Reflex Neurovascular Dystrophy about a month ago. I understand that there are only three places ...

Congenital glucose galactose malabsorption

• By skybaby1209 · New reply October 19, 2011
• 3 replies
• Hello, my daughter was diagnosed with CGGM @ 10 weeks. She will be 2 in December & is doing wonderful! As she is getting older I'm finding that the diet is getting a little bit more tricky. Is there anyone ...

What should I do about school

• By RSDfighter · New reply August 9, 2011
• 6 replies
• So I have been Homebound for 2 years now, due to my medical problems, and I'm 15 and I will be starting 10th grade next year. My main issue is RSD/CRPS but I also have undiagnosed problems, and anyways ...

Webinar--making the transition to college

• By redtailhawk · Posted August 5, 2011
• 0 replies
• G-PACT is sponsoring an online webinar aimed at high school aged patients with DTP, their parents, school administrators and anyone else interested in making the transition to college as smooth as possible ...

Starting College

• By rebdomine · New reply August 5, 2011
• 1 reply
• I do not have a spleen and have IgM defiency along with pain associated with cronic Epstein Barr. Last school year I was absent 68days and went home early 12. The principal talked to the state to work ...

Adrenal Hypofunction and steroid inhalers

• By pensacola · New reply June 18, 2011
• 4 replies
• My daughter is a former 28 week preemie who is now 3 1/2. She had adrenal hypofunction for about a year after birth and took hydrocortisone. ( We had the emergency kit also.) When she turned one they ...

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