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keeping joy and faith

kworkman
  • By kworkman · Posted 1:32 pm
  • Journal · 0 replies
  • So many people ask me how can I smile through all my pain and tragedy. The key is to remember when comparing your self to others compare down not up. In 1992 when diagnosed with cervical cancer at age ...

Unknown Diagnosis right now

greeneggs416
  • By greeneggs416 · Posted 10:34 am
  • Journal · 0 replies
  • For years pain has racked my body it comes in episodes as I call them. I have triggers and know a lot of them but unfortunately that does not help a whole lot. I have been diagnosed with Syncope, Lyme's ...

Mast cell activation/ MTHFR SNPs and other histamine issues

Bellagunn
  • By Bellagunn · Posted 9:25 am
  • Discussion in Getting a diagnosis · 0 replies
  • Hi everyone, So far Gleevec is working wonderfully; I have had zero anaphylactic reactions while on it (I have stress tested with triggers that have produced anaphylaxis in the past) which a is an amazing ...

Weekly Tip #5: Early Language and Literacy Development

sromesgene
  • By sromesgene · Posted yesterday at 5:02 pm
  • Discussion in My child and school · 0 replies
  • Early language and literacy development in children is essential to their overall growth and success. Washington Learning Systems (http://www.walearning.com) offers resources for parents, early childhood ...

tarlov cyst

Pam858
  • By Pam858 · Posted yesterday at 12:52 pm
  • Journal · 3 replies
  • I am having tarlov cyst surgery and a laminectomy at L4 L5 soon. Untested in hearing from people who have had these cysts or had the surgery ...

tarlov cyst surgery

Pam858
  • By Pam858 · Posted yesterday at 12:32 pm
  • Discussion in Finding emotional support · 1 reply
  • I am in the process of scheduling surgery with Dr feigenbaum in Kansas City for a tarlov cyst and a laminectomy at L4-L5. Probably will be mid July.I saw the posts from 2009 and 2012. I would love to ...

idiopathic anaphylaxis

yellowroseli
  • By yellowroseli · Posted yesterday at 11:15 am
  • Discussion in Getting a diagnosis · 3 replies
  • I have been diagnoised with idiopathic anaphylaxis. I have been having anaphylaxis for the past year,22 episodes. I was wondering how you were diagnoised by your Dr. for idiopathic anaphylaxis. My bone ...

OPLL

Baby777
  • By Baby777 · Posted yesterday at 9:24 am
  • Discussion in Finding emotional support · 0 replies
  • I have OPLL and need some information about this rare disease. I`m a Filipino but residing in Japan for more than 20 years now. I have consulted two Japanese doctors and the last one from Keio University ...

Cauda Equina Syndrome

abcdpete
  • By abcdpete · Posted May 21, 2013
  • Discussion in Finding emotional support · 1 reply
  • basically after getting sciatic pains for two years my disk finally ruptured last summer and left me with cauda equina syndrome, as a 24 year old lad theres not much worse news you can hear when your ...

Diagnosed with Cerebral Vasculitis

Carrie729
  • By Carrie729 · Posted May 21, 2013
  • Discussion in Finding emotional support · 0 replies
  • Hello, My mother was just diagnosed with Cerebral Vasculitis. Just March 9, 2013 she was a functioning working adult. She is 67. She started to do off the wall things, like forgetting things she has known ...

drug induced parkinsons, any advise on this

3littlepegs
  • By 3littlepegs · Posted May 21, 2013
  • Discussion in How my disease has changed my life · 2 replies
  • On top of all the other things i feel like a magnet at the min attracting everything. My new meds for my newly diagnosed Mastocytosis Urticaria pigmentosa that i was prescribed and only just started taking ...

Oculopharyngeal Muscular Dystrophy

ebiggs

Sneddon syndrome

kworkman
  • By kworkman · Posted May 20, 2013
  • Discussion in Getting a diagnosis · 0 replies
  • Has any one had trouble finding a doctor to diagnose and treat Sneddons Sy ndrome. I keep going in circles every doctor I sees tells me to see a different doctor ...

Help I need advice to get a diagnosis

AJ88
  • By AJ88 · Posted May 20, 2013
  • Discussion in Getting a diagnosis · 5 replies
  • Hi, I need your help to diagnose what is wrong with me. I started getting recurrent pleurisy last year (August 2012) and in January 2013 on my last bout I was admitted to hospital for multiple tests ...

Building community

joyceg98
  • By joyceg98 · Posted May 20, 2013
  • Journal · 0 replies
  • Here's a great list from Robin Martinez of SmartPatients about how YOU can help to build the community. You are already doing most of this, but it's a good reminder of what makes these communities so ...

Brain surgery Tuesday am-prayers please

Liiiveinhope
  • By Liiiveinhope · Posted May 20, 2013
  • Discussion in Finding emotional support · 9 replies
  • One of my dearest friends is having surgery tomorrow am to remove as much as possible of a brain tumor. The trigeminal pain has become too monsterous to bear. I'm asking for prayer for her please. In ...

Another Update On My Life

LucyHeart
  • By LucyHeart · Posted May 20, 2013
  • Journal · 0 replies
  • Hey everyone! Remember my last journal? If you don't, you can find it on my profile. I have been doing great. I have tried lots of different foods and not all tasted good but I have found some new foods ...

AL-ANTIBODY- TRIAL LIVE IN THREE LOCATIONS

Muriel
  • By Muriel · Posted May 20, 2013
  • Journal · 0 replies
  • AL-ANTIBODY- TRIAL LIVE IN THREE LOCATIONS NEOD001 TRIAL NOW LIVE AT THREE LOCATIONS IN USA: See our website www.amyloidosissupport.com near flames on top for locations and for the fact sheet…if you have ...

Diagnosis help

Harvest
  • By Harvest · Posted May 20, 2013
  • Discussion in Getting a diagnosis · 1 reply
  • Hi I have a 10 year old son whom was thought to have Marfan Syndrome however upon cardio examinations & a full body x-ray, it maybe that he has Snyder Robinson syndrome which is a syndrome that has Marfaniod ...

FAP-TTR-HEREDITARY- TTR TRIALS LIVE - ISIS

Muriel
  • By Muriel · Posted May 20, 2013
  • Journal · 0 replies
  • HEREDITARY- TTR TRIALS LIVE - ISIS http://www.clinicaltrials.gov/ct2/show/N CT01737398?term=ISIS+FAP&rank=1 http://www.amyloidosissupport.com/ISIS_4 20915_final.pdf ISIS TRIAL NOW LIVE AT THREE LOCATIONS ...

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