Our daughters are doing great! They are growing. Ella has just now caught up to a child average size her age...took 4 years but she did it. Ava is still behind, and am not sure she will get any bigger. We had bone age tests done awhile back and hers is advanced which mean she is going to stop growing sooner than the average child. Also means since she is still growing slow and still little she will be little. We don't mind we lover her no matter what.
Faith has entered 1st grade and it has been a chore for us all. Seems we have some emotional issues to deal with, not sure if it is related, but it could be. She is also on an IEP due to the Neonatal Graves, and speech delay. I think by next year there will not be an IEP in place which is great, just a year later than I was hoping for.
Ava and Ella will be in school next year, and were in preschool last year. They didn't do to well as we still are dealing with potty training issues, and speech delays. Ava has some other issues, sounds really freek her out. So she won't even enter a public bathroom, or one at the school. I figured we would give em another year at home, and try again next year. I think they will be ready.
Ava is learning to speak better, gaining ground there, as is Ella. Ella is doing so well. She gets to talking really fast and says things like "Why you, Why you, Why you doing that?" Ava isn't a fast talker, and is getting it down pretty well, at about an age of 3 level, so not far to go. The speech has been like there sister Faiths...like it just clicked one day. Weird.
Ava still is so flexable weird they call it hypersomething LOL I forgot, but as she gains strength in her legs and arms it really is improving.
No for me well that is a whole other story. I myself have not improved. My disease has gotten the best of me I think. It's winning. No I am not on my death bed, which is great. I am just to the point I really can't stand up for more than a few seconds. It has gotten to the point I can no longer were real shoes. I were some mary jane crocs because that is the only shoe I can get my elephant foot and toes into. I can't see having a special made shoe made, because my foot is ever changing, as is my toes. The skin on my legs is so gross...going to be honest about it, people see it and they laugh at me in the stores, point at me. Think I am a freek. I have to tell myself they dont know and I am different exspect it. I stop and have even taken the time to let kids know I am different but because I have a disease, and tell them I use to look like them. Usually I tell the kids, as the adults should already know I have a disease, and that what they are doing is wrong. It will come back to bite them in the butt I know.
Well enough of my story for now. enjoy and thanks for reading,