PLS Anybody...???

Been wondering if anyone keeping in touch with the support group has been diagnosed with PLS....Primary Lateral Sclerosis. I'd be interested in hearing what they say about keeping up their muscle tone...and getting their balance back. I'm a 79-year-old retired guy living in Quartz Hill, Calif. And my e-address is--- ddm336@verizon.net ---if you want to use it instead of this journal discussion. Hope to hear from someone...