hi i am 44 yrs old & i was diagnosed with tmep . iv'e had it for at least 15 yrs . but was just diagnosed last year. every Dr. i went to would ask me what was all over me. now that i think back my first symptom was the morning shower , every time i would take a shower in the morning it would make my skin feel prickly & itchy . then i started getting spots on my back & they would turn into hives & slowly but surely i started getting it all over my body. I have it all over my back, tops of arms, stomach, thighs & breast. for a long time i thought it was a reaction from the pain meds. i was taking . then about 5 yrs ago i became very sick to my stomach . i lost 40 pounds & my hole life changed , i was so sick & the GI DR. had no clue what was wrong with me . I had no insurance & every walk in clinic had no clue either . finally i got Medical coverage & the first thing i did was go to a dermatologist because i was so itchy all the time & the cluster of rashes where getting worse . he did some biopsies & diagnosed me with TMEP . he started treating me with antihistamines & that helped control the itch some what but i was still really sick to my stomach all the time. finally the dermatologist sent me to the cancer center to try a drug they use on people with leukemia & stomach tumors . after a month or two my stomach started feeling better. I still have stomach issues but there alot better . iv'e gained 27 lbs back & my spots seem to be fading a little . when i first went to the cancer center the DR. tested me for a trip tate level & my levels have gotten so much better since my new meds.