I have had a strange, chronic sinus infection for almost two years now. It features this thick white material, that dries everything out terribly. I have to flush this white "stuff" out with a waterpik (blunt end without the attachment). It's like plaster of paris.
I was able to walk around and function for over a year, my original ear nose throat doctor said it wasn't a big deal. Now I have been bed ridden since March 2006, with severe bone pain (face, frontal sinuses), severe pain in entire mucus membrane of all sinuses, pain in upper throat and ears, and horribly severe flu symptoms, and I still have this horrible dry white "stuff" growing in my head which I still have to flush out with the waterpik.
Every doctor I saw tried to tell me I have a nerve disorder, or that I needed mental help. The one test they could do which may have shown a bone infection, a bone scan, they refused to do for many months. After 5 months they do a bone scan, which shows something in my bones, which they now write off as something from my sinus surgery, instead of the bone infection I feel literally eating me alive. If they had just listened to me, and done the bone scan anytime before the surgery, I asked them for 3 months before sinus surgery to do a bone scan.
The pain is so bad I get horrible nausea and although its rare, sometimes it causes me to vomit. A fungal infection of the tissues can be treated with IV antifungals, but fungal infected bone has to be removed, so each day my future becomes ever more horrible. If it goes on for too long, even removing bone may not get all the infected bone which leads to brain infection and death. So time is not on my side.
I have a website up with my story, and pictures of my bone scans,
This disease is so horrible. My flu symptoms make me feel like I have full blown full. My mother takes pain medicine so I have access to pain medicine. If I could not take pain medicine at this point, I would not be able tolerate the pain and I would have just stop it all. With the pain medicine the pain ranges from a 7 to a 10 a times. Other than this infection I am in good health, no HIV, no diabtetes.
I am hoping I will be able to email to reach a specialist somewhere with a link to my webpage, and maybe someone will recognize what is going on, and help me get diagnosed so I can be treated. Thanks for reading my message :)