I have been diagnosed with another Tarlov Cyst; trying to find a doctor that knows how to treat this Rare Disease if very difficult. A person has to Travel; for some, the Pain is too strong for a long drive or even a short Flight...... plus, other Travel Expenses.
So far, I have only learned of a doctor in Kansas, California, and Maryland. Should a physician read this; and you treat Tarlov Cysts, please let us know out there that suffer from this horrific Life of Chronic Pain.
I have tried everything I know to get some relief; very hard. But, I continue to Pray and try to keep a Positive Mind.............. God Bless and hope there will be more physicians that can help us! Cah