This is a continuation of the discussion called "Idiopathic Juxtafoveal Telangietasis Type 2" started on July 15 2012, under the NORD Rare Disease Support Community, in the My Disease Has No Treatment sub topic. That discussion is set to go inactive and will not accept new posts as of approximately Oct 15 2012. The discussion has over 100 posts, many containing valuable information about Mac Tel. It can be viewed at http://www.inspire.com/groups/rare-disease/discussion/idiopathic-juxtafovea l-macular-telangiectasia-type-2/
There is also a very helpful discussion called "Mac Tel Support Links Only" on this site. Please visit it at http://www.inspire.com/groups/rare-disease-and-genetic-conditions/discussio n/mac-tel-support-links-only/
We welcome everyone, new members and old, to join our discussion. Together, we can support each other and bring awareness to the need for more information and treatments for the disease.
Kim and Friends
Edited March 21, 2013 at 8:20 pm