My daughter had TC surgery done in K. City, on May 19th 09 by Dr Fiegenbaum. I think he is one of the handful of Nueros in the country who knows how to do the surgery. Most neuros told her that Tarlov cysts do not cause any problems. WRONG!! We had a benefit for her in May that brought in a lot of money or so we thought. Her money is gone now, she has applied for disability, they drag it on. She can't work yet, as she still has post op pain, it could take up to a year to be pain free if ever. How do you get the government to listen. I read not to long ago that any one with a rare disease would get disability in about two weeks, this has been three months. Does any one have any ideas of how we can get this going. She needs help bad.
Yes, Tarlov Cysts disease is a rare disease. The pain still keeps her on her back most of the day.
Thank you Irma65
Edited September 2, 2009 at 9:50 am