leri-weill/madelungs

i have leri-weill/madelungs i got it prity bad in my arms and legs ive had a few operations on my right wrist but its still the same if not worse and the pain is always their, my left wrist is going the same way, so are my knees and ancles, if theirs anyone out their who has this horrible disease please get in touch thank you, magdalene johnston.