Hi to all. I was diagnosed with Aggressive Systemic Masctocytosis 2 1/2 years ago. I went from being reasonably healthy to drooling on myself and going into shock every other day, with paralysis and strokes within 3 months. Many doctors did not know what was wrong, luckily one was a rare disorder specialist and he spent about 30 minutes with me, took some tests and I was confirmed fast after that. I was too far gone even for Gastrocrom, I became allergic within 2 weeks. They gave me less than 2 months to live. I barely remember this time period, as I lost my memory and could barely put a subject and verb together in an hour, and 4 months earlier I was a public speaker. I am writing this, because this began my journey into being a very well researched individual on holistic medicine for mast cell and other rare autoimmune diseases. I have been fortunate to have been to some of the best clinics with the best alternatve MD's in the country and after 4 months of cellular detox treatment and special diets, I was able to walk and talk again and maybe I can help someone. It has been a long road back and I still have to watch my diet carefully, but I am 85% back to my old self, with no drugs and no trps to the hospital and am happy to share any information ith people are are looking for a complete healing from this, not just a bandaid.
Edited January 10, 2011 at 8:45 pm