My wife was recently diagnosed with Auto antibodies to a 128-kd Synaptic Protein. According to The New England Journal of Medicine there are only Three Women with the Stiff-Man Syndrome and Breast Cancer. My wife also lost her hearing and has profound hearing loss in both ears. She lacks balance both her feet/ankles turn in and she needs to use AFO splints on both legs. She had serve muscle spasms in her right arm and was on 90 MG of diazepam. She was recently hospitalized for six months and is currently home. The fourth chemotherapy treatment removed the pain in her right arm. She is currently on Bacolfen, diazepam, tamoxifen, effexor XR and IVIG's. Our doctor evaluates her every three months and increased her bacofen and IVIG treatments. My wife is 46 years old and is becoming more and more frustrated with this disease and has a lot of questions:
1. Will here hearing come back?
2. Will the stiffness in her body go away?
3. Will she regain her reflexes, balance?
4. Will she need IVIG treatments for the rest of her life?
She goes to PT/OT twice a week which helps but she really wants to go back to work. If anyone has the time and can share their experience, strength and hope. I can be reached at: firstname.lastname@example.org
Edited July 21, 2008 at 8:26 am