My husband was just diagnosed a month ago, but was told he has had IPF for a long time and has been misdiagnosed for quite some time. In the past week he has had to increase his resting oxygen to 4 1/2 -5 liters and he uses 6 when he is up moving around but still gets quite winded and often s to stop and catch his breath while walking just a short distance. The past 3 days he has had severe pain in his joints and muscles and has had recurring problems with constipation, severe fatigue and chills. when I check his pulse ox resting today it was 95 percent. His color does not look good to me, but there are so many issues with this awful disease I don't know if he is having bad days or if this a progression to something worse.
I know a pulse ox of 95 is good but am concerned about all the other symptoms that are getting worse. His chest and back pains seem to get worse each day. I am going to talk to his dr about pain meds to make him more comfortable. And does anyone know if hospice is most always needed at the end? Many situations I have read about this seems to be the situation. This such a scary disease and the fear of the unknown is even worse. Thanks in advance for all your help