Hi. How are you?? I hope you all are having a good night and a better day and might tomorrow ..
I have a question for you., I have severe relapsing polychondritis and am in lung failure with trachealbronchialmalacia with a permanent tracheostomy.
I was diagnosed last week with 20% bilateral nerve damage/deafness in my ears (no wonder I was "yelling" at everyone when I thought I was speaking in a notn tone of voicemail.
Last night, for the First! Time, I noticed that my right ear was bright red, inflamed and also was beginning to curl inward; looking line the cauliflower shape of the relapsing polychondritis ear. The ears are usually the first sign if this disease and the trachea is the last. My doctors have never seen a patient have the pulmonary system collapse first.
Today was the day I took my Prednidjbe pill; I take kne every other day; my ear is not so inflamed today.
Has anyone had this ear inflammation?,