When I was first diagnosed with PF (CHF) I was put on massive doses of prednisone (by IV as well as pills) by my first pulmonologist, who thought I had IPF. I gained 25 pounds but got rid of inflammation,
My lung biopsy had been done at Mass General last year and showed UIP pattern as well as indicators for CHF. The pulmonologist at MGH took over my case after 6 months on prednisone and immediately put me on high dose of CellCept (micophenolate mofetil, I think) and started weaning me off the prednisone.
I was happy to get off the prednisone because I had really suffered from "prednisone psychosis" + the weight, but after 6 months on CellCept don't notice any effects at all. Can anyone provide any pros or cons on CellCept? I meet with the MGH Pul. on Aug 6 and would love to feel I'm on some right track. Thanks