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amiodarone toxicity
- By munlaw · New reply yesterday at 11:52 pm
- Discussion in Living better with pulmonary fibrosis · 3 replies
- Happy Day to all!, I am new here and have not seen anything shared on pf secondary to amiodarone toxicity. I was diagnosed about three months ago and am on o2 at 2liters 24-7. I am 54 and also have heart ...
Nose bleeds
- By mbp17 · New reply yesterday at 10:48 pm
- Discussion in Living better with pulmonary fibrosis · 18 replies
- Please help! My mom is on 24/7 O2 at 4. She constantly has clogged nostrils. We have tried saline spray, ayre gel, peppermint oil drops and some other drops that they gave her when she was in hospital ...
Steroids; a love/hate relationship
- By enchantedlisa · New reply yesterday at 8:41 pm
- Journal · 10 replies
- My husband came home from hospital on April 29th, jacked up on 60mgs of Steroids. He's now down to 40 mgs. We met w/Pulm. Dr. yesterday and said he's going to keep him on 40mg until JULY. He's been on ...
New lease on life for my courageous dad
- By ashcat1025 · New reply yesterday at 5:26 pm
- Journal · 4 replies
- He got a second call yesterday. 6am this morning it was a go!!!! He is in surgery as we speak and the dr just told us they are getting ready to finish up. I'm so greatful to the person who chose to be ...
Starting the journey
- By Vlcollin · New reply yesterday at 4:42 pm
- Discussion in Diagnosis and testing · 1 reply
- My husband's breathing was starting to get labored while trying to exercise and they thought it was vascular due to other problems. He was put on 02 and had a catscan that showed he had emphezema in the ...
My Life
- By holywoodqueen · New reply yesterday at 10:54 am
- Journal · 10 replies
- Hi all i'm in final stage's of pulmonary fibrosis,i have had this illness about 6/7 years now at this min in time i have good day's and i have bad one's ya just have to get on with it as best ya can.well ...
Last stage of idiopathic pulmonary fibrosis
- By Brendagb · New reply yesterday at 7:11 am
- Discussion in Emotional support · 8 replies
- Please help...... I understand there are stages of this disease . Can you help me to understand what the last stage of it looks like? Trying to educate myself in order to advocate and care for my dear ...
Prayers For Oklahoma!!!
- By ShelaKay42 · New reply May 24, 2013
- Journal · 16 replies
- PRAYERS FOR OKLAHOMA TORNADO VICTIMS AND FAMILIES OF THOSE WHO LOST LOVED ONES! GOD BLESS AND BE WITH YOU ALL ...
Mom got double lung transplant
- By mbp17 · New reply May 24, 2013
- Discussion in Lung transplantation · 35 replies
- She did it, double lung transplant. Made it through surgery and is back in her room. I know a long road ahead but one hurdle at a time. Again prayers and thanks to the donor's family can't imagine their ...
false alarm
- By ashcat1025 · New reply May 24, 2013
- Journal · 6 replies
- so unfortunatley the lungs were not good enough for me dad. words can not describe how devistated i am. i was hoping this nightmare would be over. that he would be getting his second chance today and ...
got the call today!!
- By ashcat1025 · New reply May 24, 2013
- Journal · 4 replies
- my dad got the call today that could give him a second chance at life!! hes is on his way to ucla now..they will tell him soon if the organs are a go or not!! im soo nervous for him..hes been on the waiting ...
Sorry I've been gone!!!
- By ShelaKay42 · New reply May 23, 2013
- Journal · 3 replies
- Sorry Inspire Friends that I have been gone so long. Been having health and breathing issues from all this weather. Alot going on Hope everyone has been well and had alot of blessings going on in their ...
Zach Sobiech has passed away...
- By Blitz · New reply May 23, 2013
- Journal · 11 replies
- Zach passed away this morning at the age of 18. For those not acquainted with his story he has suffered from osteosarcoma since the age of 14. Last year, upon hearing that he only had a few more months ...
Mom getting weaker
- By Hunny · New reply May 23, 2013
- Journal · 3 replies
- My Mom over the last two months has been getting weaker and weaker. In just the last few weeks alone she went from using a walker to walk to using a wheel chair to get around. This morning the nurses ...
hospice
- By VickyD · New reply May 22, 2013
- Journal · 9 replies
- I'm new and my husband has PF. He was just diagnosed in April this year but probably had it much longer. This past weekend he has gotten progressively worse. He's gone from being on oxygen at 2 liters ...
Got the call
- By mbp17 · New reply May 22, 2013
- Discussion in Lung transplantation · 8 replies
- We got the call at 4 :00am. Still waiting to see if surgery is a go. Please say a prayer for my mom all the other receipiants but especially the donors family for their choice to do this at such a hard ...
Accuracy of Pulse Oximeters
- By Blitz · New reply May 21, 2013
- Journal · 64 replies
- Wild things have been posted on this sight lately about the accuracy of pulse oximeters . The statements were not correct as to my understanding of pulse oximeters and how they work. I am an RN and it ...
Pulmonary function test
- By JOLICARY · New reply May 20, 2013
- Journal · 10 replies
- I hope you all don't mind me asking! I was wondering if people with PF could tell me what your score is?? Just wanted to see how I am doing in the grand scheme of things ...
Sunshine on my shoulders
- By Jastopp · New reply May 20, 2013
- Journal · 11 replies
- John Denvers song...especially for all of you to hear and enjoy. I sing it for all the ones in life that for whatever reason just aint by us all right now, or ARE with us and we are thinking of them too ...
SCOOP Transtracheal oxygen therapy...starting out
- By Vickilambert · Posted May 19, 2013
- Journal · 0 replies
- My 78 years 'young' mother, has COPD (emphysema) and since an exacerbation following on from my younger sister's sudden death at the end of 2011, she has required oxygen 24/7. So she went from nightime ...
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The Pulmonary Fibrosis Foundation Caregivers Support Community connects pulmonary fibrosis caregivers for support and inspiration. This community is sponsored by the Pulmonary Fibrosis Foundation, an Inspire trusted partner.
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