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What does the future hold?

Sabradee
  • By Sabradee · New reply 4:12 pm
  • Discussion in Newly diagnosed · 4 replies
  • Surgery at Duke to remove 10cm mass from my right ovary, my left ovary and appendix turned into appendiceal cancer. The gyn/oncologist had a GI oncologist look and they decided to leave the margin of ...

PMCA-Aggresive Appendix Cancer with Metastisis

Sabradee
  • By Sabradee · New reply yesterday at 2:08 pm
  • Discussion in Living with PMP and related cancers · 5 replies
  • I have PMCA which is different from PMP. PMP is a low grade cancer which is slow growing. PMCA deals with a high grade, aggressive appendiceal muscinous adenocarcinoma. It has metastisized to my liver ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

GOD the Great Physician!!!

Sabradee
  • By Sabradee · Posted May 8, 2013
  • Discussion in Spiritual issues · 0 replies
  • Anyone looking for the answer to help them deal with their illness, or a miracle? Our GOD is the solution! During my journey with appendiceal cancer I have and will continue to place my FAITH in the lord ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Diagnosed with PMP and no insurance

guiarnold
  • By guiarnold · New reply April 17, 2013
  • Discussion in Newly diagnosed · 5 replies
  • My daughter in law (25 years old with a 5 month old and 17 month old baby) was diagnosed with PMP last Tuesday. She desperately needs surgery, but we live in Michigan, USA and they do not have health ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

Dumping syndrome after surgery

Scottanderson
  • By Scottanderson · New reply April 5, 2013
  • Discussion in Nutrition and exercise · 1 reply
  • I am 3 week out from surgery. I had the surgery without HIPEC, The doctor removed 1/2 my colon, 1/2 my stomach, my gallbladder, my spleen, and my appendix. I am having issues with eating. There are days ...

burning sensation

sinaoif
  • By sinaoif · Posted March 13, 2013
  • Discussion in Surgery and recovery · 0 replies
  • had my surgery last august. since october have had several kidney infections which i never had before. several times i have had a severe burning pain in my right side. just wondered if anyone else has ...

Undecided

LIZ01
  • By LIZ01 · New reply March 10, 2013
  • Discussion in Newly diagnosed · 3 replies
  • I was told a month ago i have PMP and told to get fit. As I have no symptoms, I can't decide if I want to have the CRS and HIPEC. I read that some times the symptoms can take years to develop, and the ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

Hana Abu Jubain ( Potential patient.)

H-
  • By H- · Posted January 4, 2013
  • Discussion in Living with PMP and related cancers · 0 replies
  • Dear Sir/Madam, My name is Mariam Abu Jubain and I am a student currently studying in the UK. I am writing to you with regards to considering my mother as a potential patient to be taken under your care ...

My friends's wife had surgery for PMP over a week ago still in ICU.

forwarren
  • By forwarren · New reply December 25, 2012
  • Discussion in Surgery and recovery · 2 replies
  • The first surgery was on Dec 11 for over 12 hours. She had complications due to bleeding. On Dec 14 she had more surgery. The doctors did not get all the tumors, several organs were removed but she could ...

Recovery after HIPEC

2kidmommy
  • By 2kidmommy · New reply November 11, 2012
  • Discussion in Surgery and recovery · 3 replies
  • My husband was diagnosed with PMP (originating from the appendix) early in October 2012, and we are meeting with Dr. Mansfield next week to schedule the HIPEC surgery. He is 46, is not experiencing any ...

Over age 70

Mpersaud
  • By Mpersaud · New reply November 9, 2012
  • Discussion in Newly diagnosed · 24 replies
  • My mom is being investigated for PMP, has had 3 CT scans, blood tests, ultra sounds and a colonoscopy, she also had a bladder test done. Everything is clear. However the CT scan shows significant change ...

Leg & Feet Swelling

ForPop
  • By ForPop · New reply November 1, 2012
  • Journal · 1 reply
  • This is such a wonderful resource and I appreciate everyone's willingness to share! I have another question regarding leg and feet swelling. My dad's feet and legs are swollen and one reason given by ...

Treatment for PMP

nmittal1
  • By nmittal1 · Posted October 30, 2012
  • Discussion in Treatment · 0 replies
  • Dear All, I am from New Delhi, India and my mother (60 years) had been diagnosed with PMP in May-2009. She had undergone de-bulking surgery in May-2009 itself. Thereafter, in recent CT (Oct-2012) the ...

Apprehensive

madfran
  • By madfran · New reply September 22, 2012
  • Discussion in Newly diagnosed · 17 replies
  • Hi, I am newly diagnosed with PMP and very apprehensive to what lies ahead, I have yet to meet my consultant, waiting for appointment to arrive ...

pmp & moas & tnp

friendofjudys
  • By friendofjudys · New reply September 11, 2012
  • Discussion in Living with PMP and related cancers · 20 replies
  • my friend had moas in 2008 and another 2012, Dr. said couldn't get all tumors(described as throwing jello on wall and then throwing handful of sand onto jello & everywhere sand stuck, that is pmp) She ...

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Discussion topics

PMPCURE: The PMP Research Foundation has earned the GuideStar Exchange Seal, demonstrating our commitment to transparency!... http://t.co/rPTNb3rInY

PMPCURE: Just a reminder that the deadline for applications for the two $50,000 research grants offered by PMPRF for 2013... http://t.co/sTU3cvqCZG

PMPCURE: DC Rocks PMP coming up this Sunday in Boston, MA! Click on the link for details. You can attend in person, be a... http://t.co/VvH8E9I1bz

PMPCURE: Next fundraising event coming up on Sunday, May 19! The Second Annual DC Rocks PMP is taking place at Wonderbar... http://t.co/ThuPFAKSSg

PMPCURE: Tressa and Drew's half-marathon is coming up this weekend, and they have already surpassed their fundraising goal!... http://t.co/zMR3e50Bv1

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About this community

The Pseudomyxoma Peritonei (PMP) Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the PMP Research Foundation, an Inspire trusted partner.