The Pseudomyxoma Peritonei (PMP) Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Post HIPEC surgery recovery

HotDeal
  • By HotDeal · New reply March 27, 2014
  • Discussion in Living with PMP and related cancers · 6 replies
  • Hello! I was originally diagnosed with Stage 3 Ovarian Cancer and had my first chemo treatment when they reassessed and decided that it was not ovarian, but PMP. Two days later I was at Emory/Winship ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Yearly Scan

madfran
  • By madfran · New reply March 17, 2014
  • Journal · 3 replies
  • It was my first years scan the 7th Feb, got the results in the week, all clear. Such good news, so hopefully no hospital visits until next Feb. It was such a bad year, 7 weeks in an induced coma and a ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

One Million Dollars for Research, and 2013 Grant Recipients!

kmb315
  • By kmb315 · New reply January 2, 2014
  • Discussion in Awareness and advocacy · 1 reply
  • We are overjoyed to announce today that this year the PMP Research Foundation achieved our goal of raising ONE MILLION DOLLARS for PMP research in 5 years! This was the dream of our founder, Lisa Luciano ...

Too old for surgery

joankay
  • By joankay · New reply December 6, 2013
  • Discussion in Nutrition and exercise · 3 replies
  • I was diagnosed with PMP two years ago after surgery for a ruptured appendix. Due to my age (now 85) surgery is not an option, so I am wondering if anyone out there has advice on nutrition, supplements ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

newly diagnosed from israel

Imapmp
  • By Imapmp · New reply November 8, 2013
  • Discussion in Newly diagnosed · 6 replies
  • hello all, My mother has been diagnosed with PMP, about 3 weeks ago. It started from suspicion of ovarian cancer since CT, colonoscopy and gastroscopy were normal besides the masses that were shown on ...

I'm Normally Very Positive, but...

Jer_
  • By Jer_ · New reply August 8, 2013
  • Journal · 55 replies
  • I was just notified by a specific group moderator that I had to be diagnosed or have a family member diagnosed with a horrible, horrible disease in order to be a member. I find this very frustrating due ...

PMPRF Summer 2013 Newsletter: The Summer Scurry is Back!

kmb315
  • By kmb315 · Posted August 8, 2013
  • Discussion in Awareness and advocacy · 0 replies
  • Check out the PMP Research Foundation's Summer 2013 Newsletter to find out the latest PMPRF news, including dates for more of our 2013 fundraising and educational events: http://www.pmpcure.org/blog/pmprf-summer ...

Natural alternatives

datsok

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

HIPEC surgery done, recovery slow, questions

lydiad
  • By lydiad · New reply July 26, 2013
  • Discussion in Surgery and recovery · 5 replies
  • I had appendix cancer and hipec surgery on June 5, 2013. Spent a week in ICU and week in hospital room, extreme nausea in room, vomit 2 or 3 times a day. After coming home, it eased a little, taking Phenergan ...

IV Nutrition/chronic bowel obstructions

janla
  • By janla · New reply July 23, 2013
  • Discussion in Treatment · 5 replies
  • My husband has PMP. When diagnosed he was too far advanced for surgery. He's been on chemo about 18 months. Now he has bowel obstructions and he is in the hospital for liquid nutrition therapy. He is ...

Hardened, inoperable PMP tumors and chemo?

daughter1897
  • By daughter1897 · New reply July 23, 2013
  • Discussion in Family, friends and caregivers · 1 reply
  • Hello everyone, I am new to the PMP community and wondered if there was someone out there who might be able to help me. My 73-year-old mother has been battling PMP for some time, and recently the doctor ...

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About this community

The Pseudomyxoma Peritonei (PMP) Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the PMP Research Foundation, an Inspire trusted partner.