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I am 10 and 1/2 weeks pregnant with twins. One of the twins has already suffered fetal demise and I found out yesterday that the twin with the heartbeat is abnormal. They told me that the baby's heart is outside of the body and there is fluid on the brain. This condition is called Ectopia Cordis. I know that it is a very rare conditions and only happens 1 in a million times. I was wondering if anyone had any advise on doctors, information on the condition, etc.
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