Preemies with CP

Information and support for those raising a preemie with CP.

Discussions

Spastic CP

Melissa522
  • By Melissa522 · New reply April 16, 2014
  • 15 replies
  • My daughter, a former 25 weeker with Grade 4 IVH and PVL, was recently diagnosed with spastic CP. She is 10 months, 6.5 adjusted. The doctor was awful, I think she was annoyed that we were in the office ...

CP diagnosis... What now???

God-gives-strength
  • By God-gives-strength · New reply March 8, 2014
  • 13 replies
  • Hi all, we saw a peas neuro today who diagnosed my little Gabriella (9.5months/7months adjusted) with mild CP. I'm feeling overwhelmed and not sure what this means for us???? He said there was a lot of ...

4 month baby crossing ankles

hope25wk
  • By hope25wk · New reply March 6, 2014
  • 1 reply
  • Hi. My son born at 25 wks, now 4 months adj, has been crossing his ankles constantly. He crosses them then uncrosses them constantly when he's sitting, feeding,and lying on his sides. Other times he just ...

My son is a 3 year old and has microcephaly

Balajis
  • By Balajis · New reply February 17, 2014
  • 3 replies
  • Hi, My name is Balaji.S from India. My son was born on a christmas eve (24th Dec 2010) a very good day, He was born in Extreme prematurity (27 weeks) and weighed around 800 grams. He was in NICU for about ...

Night Splints/Casting

KBC
  • By KBC · New reply December 29, 2013
  • 4 replies
  • My daughter recently received botox injections in her calf muscles and has casts/night splints for sleeping. She is having a very hard time falling asleep and staying asleep. Has anyone else had an issue ...

We have a walker!!!

My3littlemonkeys
  • By My3littlemonkeys · New reply December 14, 2013
  • 21 replies
  • After 35 months we FINALLY have a walker!! We've been told many a times she would never walk. And then we got to a point where everyone thought she would walk, but would never walk independently, always ...

okay with child being diagonsed with cp

fallenmunchkin
  • By fallenmunchkin · New reply December 1, 2013
  • 19 replies
  • I finally got a diagnosis on my son duane he has a Mild case of cp that effects his lower body and balance . I have told a few people and they can't understand why I am happy. I am happy because I know ...

Dystonia of prematurity

Rmommy
  • By Rmommy · New reply October 13, 2013
  • 9 replies
  • Anyone's else Lo with increased muscle tone in his/her limbs which ended up not having CP? We went to the developmental pediatrician a week ago where he was evaluated by a nurse practitioner. In the letter ...

CP with seizures and cross eyes

Inigo26
  • By Inigo26 · New reply October 11, 2013
  • 2 replies
  • My son is a 30 weeker with quadruplegic CP. He has spasticity both arms and legs and currently receiving OT and PT 2x. Just recently, he had his 2nd pneumonia and experienced seizures after this sickness ...

ABR - Advanced BioMechanial Rehabilitation

RobinNich
  • By RobinNich · New reply September 29, 2013
  • 1 reply
  • My 23 month old granddaughter was diagnosed with CP a little over a year ago. Researching led me to the ABR site and I see there have been posts regarding the ABR rehabilitation on this site. Has anyone ...

Unknown diagnosis

myhremom4
  • By myhremom4 · New reply September 17, 2013
  • 5 replies
  • Hello, I have been a member for awhile, but don't post a lot. I have a former 29 weeker IUGR severe, 1lb 4oz. Preeclampsia, emergency c section at a hospital, not able to intubate an infant her size ...

hi l just found out that my baby girl as Cerebral palsy l dont no much a bo

traceymans
  • By traceymans · New reply September 17, 2013
  • 11 replies
  • hi l just found out that my baby girl as Cerebral palsy l dont no much a bout it or what it will means can anyone help plz ...

HBOT In UK anyone aware of any clinics for children with CP being treated

jaida
  • By jaida · Posted July 26, 2013
  • 0 replies
  • Hello, if any members aware of any HBOT clinics in UK treating children with CP, autism, ADHD . pls write phone # and addresses if you are aware of any. many thanks ...

Former 27 wkr with global delays vs CP

mcgiggles
  • By mcgiggles · New reply June 6, 2013
  • 4 replies
  • Hello! Im guilty of being an Inspire lurker, its just been so helpful and comforting to read about other preemies doing do well! My story is I have a former 27 week preemie who is now 23 months. She is ...

grade 4 brain bleed on the right side of the brain

Yashica
  • By Yashica · New reply June 4, 2013
  • 1 reply
  • My son is only 6 months old , currently he has suffered a grade 4 brain bleed on the right side of his brain. He developed cystic structures in his brain, which have led to the development of white matter ...

please help us get a van for jasmine

mommytobe01
  • By mommytobe01 · New reply April 25, 2013
  • 4 replies
  • Good morning inspire family and friends, my name is karen rubinos i am the mother of a 25 weeker his name is Bruno. he has been doing so well he is doing what a 17 month old should be doing i am truly ...

CP worries

26weekmom
  • By 26weekmom · New reply March 23, 2013
  • 15 replies
  • My son who is currently 5 months actual and 2 months adjusted was born at 26 weeks and 1lb 6oz. He spent 10 weeks in the NICU. He was on a ventilator, an oscillator, CPAP and a hi flow cannula during ...

Cerebral palsy in preemie?

claireyocum
  • By claireyocum · New reply February 24, 2013
  • 8 replies
  • My jayden was a 25 weeker born weighing 1 lb 12 Oz. He didn't have any brain bleeds whenever he was Born and didn't have any major problems during his 102 day nicu stay. He has been seeing physical therapists ...

Finally coming home w 24 hr care - experiences?

gnorris51
  • By gnorris51 · New reply February 17, 2013
  • 3 replies
  • I have been following at a distance since learning that one of my twins has in addition to other issues, SQCP. Preemies 31 wks. One home after a month and healthy but the other little prince has several ...

Spasticity in preemie boy

asdbaj1
  • By asdbaj1 · New reply February 2, 2013
  • 3 replies
  • My 25 weeker (5 months actual/2 months adjusted) was just recently diagnosis with spasticity in his lower extremities. He is going to be scheduled for a MRI of the brain. He is seeing a physical therapist ...

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