Preemies with CP

Information and support for those raising a preemie with CP.

Discussions

Former 27 wkr with global delays vs CP

By mcgiggles · New reply June 6, 2013
4 replies
Hello! Im guilty of being an Inspire lurker, its just been so helpful and comforting to read about other preemies doing do well! My story is I have a former 27 week preemie who is now 23 months. She is ...

grade 4 brain bleed on the right side of the brain

By Yashica · New reply June 4, 2013
1 reply
My son is only 6 months old , currently he has suffered a grade 4 brain bleed on the right side of his brain. He developed cystic structures in his brain, which have led to the development of white matter ...

please help us get a van for jasmine

By mommytobe01 · New reply April 25, 2013
4 replies
Good morning inspire family and friends, my name is karen rubinos i am the mother of a 25 weeker his name is Bruno. he has been doing so well he is doing what a 17 month old should be doing i am truly ...

CP worries

By 26weekmom · New reply March 23, 2013
15 replies
My son who is currently 5 months actual and 2 months adjusted was born at 26 weeks and 1lb 6oz. He spent 10 weeks in the NICU. He was on a ventilator, an oscillator, CPAP and a hi flow cannula during ...

Cerebral palsy in preemie?

By claireyocum · New reply February 24, 2013
8 replies
My jayden was a 25 weeker born weighing 1 lb 12 Oz. He didn't have any brain bleeds whenever he was Born and didn't have any major problems during his 102 day nicu stay. He has been seeing physical therapists ...

Finally coming home w 24 hr care - experiences?

By gnorris51 · New reply February 17, 2013
3 replies
I have been following at a distance since learning that one of my twins has in addition to other issues, SQCP. Preemies 31 wks. One home after a month and healthy but the other little prince has several ...

Spasticity in preemie boy

By asdbaj1 · New reply February 2, 2013
3 replies
My 25 weeker (5 months actual/2 months adjusted) was just recently diagnosis with spasticity in his lower extremities. He is going to be scheduled for a MRI of the brain. He is seeing a physical therapist ...

My son has diplegia

By Lila12 · New reply January 27, 2013
4 replies
Hi everyone,havnt been On here for a long while..I Went to see my peadiatricion today,she tells me my 20 month old son has spastic diplegia ,I wasn't shocked at the slightest because I researched months ...

PVL and having a second MRI

By TwinMomSunny · New reply November 26, 2012
7 replies
My daughter Lily was diagnosed with unilateral PVL while she was still in the NICU. She has 3 cysts, all on the left side. She's now almost 7 months/4 months corrected, and doing very well. She's hit ...

still notholding his head up well...10 months actual

By dfyngrvty · New reply November 2, 2012
3 replies
my son Rowan, wasborn at 29 weeks. he is now 10 months old actual, and is an amazing little boy who is so happy and loves life. he has overcome many hurdles in his short life, has spina bifida, a VP shunt ...

My son 28 weeks

By ashmatash92 · Posted October 31, 2012
0 replies
Hi my name is ashley and i had a preemie he was 28 weeks i was in labor for 2 weeks straight. my water broke at 26 weeks and i held him in for 14 days. They stopped my contractions everyday and on the ...

Worried :(

By mommy1123 · New reply October 26, 2012
8 replies
My 25 weeker is now 11 mos. (7.5 adjusted) and I am concerned he has CP. He see PT and OT 2x per month and they will never give me a straight answer when I ask them what they think. He is very tight in ...

Cerebral Palsy with Micro Preemies

By Goddesswifemom · New reply October 16, 2012
2 replies
I am mostly a lurker here and love getting the info we have needed so far. A little background, our son was born Sept 2011 at 26 weeks 1lb 8oz. He spent 4 months in the NICU where he overcame 2 bouts ...

Spastic Quad CP

By paradox334 · New reply October 8, 2012
4 replies
Our daughter was just diagnosed with spastic quadripalegic cerebral palsy. She is a 24 weeker who is now almost 10 months old. I am looking for others with this diagnosis. How old are your kiddos and ...

Big Ronan update for those of you who follow him

By mommy2ronanandblake · New reply September 10, 2012
6 replies
So Ronan has made so much improvment. He is almost sitting up by himself. He pulls up on dressers and other things. He is almost crawling so close its unreal. He now shakes his head yes and no. He has ...

One amazing former preemie. Watch!

By Mrsflynn · New reply August 28, 2012
4 replies
This one hit home a bit. http://espn.go.com/video/clip?id=8296170 ...

Things you can do

Discussion topics

Preemie links and resources

Community leaders