Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

In the NICU/PICU

The NICU/PICU is your introduction to the world of prematurity. It is a stressful and uncertain time and having resources and a community in place to help you through the experience can be your greatest comfort.

my baby was born at 26 weeks and 5 days

Silvia429
  • By Silvia429 · New reply November 10, 2009
  • 16 replies
  • My little angel was born thurday... 11/05/09 he was 2 pounds. It the most hard thing am going thru. I would love to hear storys of people that have gone thru the same and how the babys are now and how ...

Very rocky road after PDA Ligation

MyLittleBoo
  • By MyLittleBoo · New reply November 9, 2009
  • 7 replies
  • Hello Everyone, My little boo, Isaac, is really struggling right now. He had his pda ligation surgery on Wednesday and since then he has had nothing but bradys and apnea spells. Before the surgery he ...

Reconnection Surgery (ostomy)

sherash
  • By sherash · New reply November 8, 2009
  • 1 reply
  • My daughter who was born in 26 weeks weighing 1lb.90z way back in Aug.15th and she was due the third week of this month, is still fighting her way in the NICU. She went through a lot for the last two ...

low milk supply

amimill29
  • By amimill29 · New reply November 7, 2009
  • 11 replies
  • I had my daughter at 29 weeks. The first couple of weeks i was producing a ton of milk. Now shes almost 5 weeks old and im barely producing any milk. ive been trying to take fenugreek and drink mothers ...

Carissa day 1 post-op

mom2gyrls
  • By mom2gyrls · New reply November 7, 2009
  • 3 replies
  • My Carissa was born @ 23wks and is now 5 1/2 months old 1 1/2 m corrected. We have been in the NICU since 5/31/09 After being transfered to a new hospital almost 1month ago it was discovered that her ...

ROP

jonathan24weeker
  • By jonathan24weeker · New reply November 5, 2009
  • 11 replies
  • My 24-weeker was just diagnosed with ROP stage I to II zone II. I'm a little irritated because he had his eye exam on 10/24 and nobody told me that they had diagnosed ROP. I didn't find out until yesterday ...

Emotional Rollercoaster (24 WEEKS)

TreMommy
  • By TreMommy · New reply November 4, 2009
  • 14 replies
  • My baby was born 10/02/09 at 24 weeks and he was doing extremely well at the begining. Breathing on his own and everything for three days. Then he got tired so now he needs help from the machine. For ...

Breastfeeding your preemie

Sydney_23wkr
  • By Sydney_23wkr · New reply November 3, 2009
  • 7 replies
  • Posted from "open discussion"....thought I might get more replies here... We have started Sydney (33 weeks adjusted) on feedings. She is getting two bottles a day now (34mls), and we're doing non-nuitritive ...

26 week B/G Twins

WyattandBailey
  • By WyattandBailey · New reply November 2, 2009
  • 6 replies
  • I gave birth to B/G twins on Oct 15 at 26 weeks. I had PIH that could not be controlled. What a roller coaster ride this all is. Everyday it seems like one or both is having a bad day. Wyatt had to be ...

NICU Social Worker with questions

meeks
  • By meeks · New reply November 1, 2009
  • 13 replies
  • Hi! I am a NICU social worker and I am attempting to create a NICU Social Work Bulletin Board (for educational purposes) for our families. Although every family is visited by a social worker, I think ...

Vapotherm Back to CPAP

oquinn27
  • By oquinn27 · New reply November 1, 2009
  • 3 replies
  • I have a son who was born at 28 weeks and is one month old today. In the last 1 1/2 weeks we've experienced many positive changes with Chase. He came off the ventilator and went to SiPAP. Then he went ...

how to streghten my bond with my son

emmanismom
  • By emmanismom · New reply October 30, 2009
  • 10 replies
  • Lately I am feeling less and less happy to go to the NICU, there is not enough time to spend with my son. And it hurts thank God I was able to spend a week uninterrupted with him but, now that is over ...

38 weeker wont bottle feed..prefers breast..cant come home :(

hopeful247
  • By hopeful247 · New reply October 30, 2009
  • 7 replies
  • My son was born at 30 weeks and after 8 weeks in the NICU hes doing well but cant seem to figure out the suck swallow breathe reflex. The doctors and nurses seem really worried and tell me this is not ...

EMERGENCY SURGERY!

babycooper
  • By babycooper · New reply October 29, 2009
  • 12 replies
  • My daughter went in yesterday to get her Mic-key button placed. Well little did I know things could go wrong, was no briefed.. nor signed any consents. Well it went wrong, the stomach lining seperated ...

Blood out of Ostomy?

JoshuaAmir
  • By JoshuaAmir · New reply October 29, 2009
  • 3 replies
  • My little one had belly distention after feeding for a week. He is 32 weeks corrected and was born at 26 weeks. His Crp and CBC labs also came back as markers for infection. The stopped his feeds 3 days ...

One twin coming home first

AnnieB312
  • By AnnieB312 · New reply October 28, 2009
  • 5 replies
  • I'm feeling very sad right now. Rough day with lots of mixed emotions. In brief... b/g twins born at 29 weeks gestation after months of unexplained bleeding and weeks of leaking amniotic fluid. Tomorrow ...

Avastin AND Retinopathy of prematurity

GrammaK
  • By GrammaK · New reply October 27, 2009
  • 11 replies
  • My beautiful, handsome grandson was born prematurely on 2/16/09 at 24 weeks gestation at St. Joseph’s Women’s Hospital in Tampa, FL. He will be 12 weeks old 5/11/09 (36 weeks gestation). He has been diagnosed ...

Ventilator dependent - need some hope!

Hokari
  • By Hokari · New reply October 27, 2009
  • 37 replies
  • My son (28 weeker, 770 gr) will be 12 weeks tomorrow. He is still on the ventilator. When he was 6 weeks he received a course of Dexamethasone with this he managed 5 days on the CPAP, but then he got ...

NICU Social Worker- Ideas wanted!

dmnicu
  • By dmnicu · New reply October 27, 2009
  • 28 replies
  • I am the social worker for a level 3 NICU in Atlanta. I'm in the process of starting a support group for our mothers and was hoping to receive from feedback about what you think would be helpful to address ...

How long did it take for bradycardia's to stop?

love2girls
  • By love2girls · New reply October 23, 2009
  • 18 replies
  • I had my two precious twin daughters on sept. 24 and they are still in the hospital. The reason they are still in the hospital is because they are having bradycardia's. I know this is normal because they ...

Group leaders

You