In the NICU/PICU

The NICU/PICU is your introduction to the world of prematurity. It is a stressful and uncertain time and having resources and a community in place to help you through the experience can be your greatest comfort.

25wker w/ pulmonary hypertention

3preemiemama
  • By 3preemiemama · New reply January 7, 2009
  • 6 replies
  • Hi, Moms and Dads, Just wanted to know if anyone has had to deal with pulmonary hypertetion with their preemies. My daughter Chloe is a 25wk twin(b) weighed 15oz (445gm). I think they have tried her on ...

I need help finding a pediatric doctor good for a preemie

preciuslex
  • By preciuslex · New reply January 6, 2009
  • 8 replies
  • My son will be going home from NICU in a couple of weeks we are currently in Austin,Tx. but Im from Galveston,TX. Devin was born at 26 wks and was 1lb 6oz on 9-11-08. I was life flighted out of Galveston ...

Any other TEF (Tracheoesophageal Fistula) Parents

Mama_2_Justin
  • By Mama_2_Justin · New reply January 4, 2009
  • 4 replies
  • Hi, my name is Stacy and I have a son with Tracheoesophageal Fistula (TEF) Our son was born 8 weeks early and we have had one heck of a long road....surgery at 6 days old, ventalator, CPAP, desats (both ...

After Nissan Troubles PLEASE HELP!!!

TAVIA2
  • By TAVIA2 · New reply January 1, 2009
  • 1 reply
  • My son had a nissan done Nov 13 08 and he has had nothing but troubles since. Right after surgery he ended up on breathing tube never woke up still is unexplained what happen to him. Brought him in to ...

25wkers almost 3mos adjusted eating poorly

marniefoy
  • By marniefoy · New reply January 1, 2009
  • 11 replies
  • Hi, I am the mom of twin 25weekers. THey are almost 3mos adjusted. THey are both on Neosure. My son eats about 65-80mls of neosure RTF, mixed with 3tsp of rice cereal and 1 tsp of powder neosure. My daughter ...

Jaundice, actigall, phenobarbital...too much TPN

chloesmom
  • By chloesmom · New reply December 30, 2008
  • 11 replies
  • My daughter was born at 27 weeks and spent her first 70+ days on TPN. She finally made it to full feeds about a week ago and now she's completely yellow due to jaundice. The doctors are telling me it ...

prayer request for my baby girl

giftfromgod
  • By giftfromgod · New reply December 29, 2008
  • 21 replies
  • Hi everyone, I just discovered this magazine website while sitting in the NICU. On May 26, 2007, I gave birth to a baby girl at 26 weeks. She's a fighter! However, she's on a ventilator, has a bacterial ...

7 Months and Savana Still in the NICU!!!

14ozMiracle
  • By 14ozMiracle · New reply December 25, 2008
  • 12 replies
  • I haven't updated in a while so I thought I'd let you all know about Savana's progress. Well as you read in the title she is still in the NICU and she is currently 7 months old going on 8 months. She ...

Grade 4 IVH

Smilecekr
  • By Smilecekr · New reply December 25, 2008
  • 13 replies
  • One of my twins has a Grade 4 IVH on his left and Grade 2 on the right. He now has hydrocephalus and recently had a VAD to help relieve the pressure. They were born at 28 weeks and are now 4 1/2 weeks ...

24 weeks, fluid retention

FlorinsMom
  • By FlorinsMom · New reply December 22, 2008
  • 6 replies
  • Any advice on getting a 24 weeker (now 2 weeks old) to pee? She is retaining a lot of fluid. http://francescahollytorres.blogspot.com ...

Im in pain!!!!!!!!!

AlayahsMom
  • By AlayahsMom · New reply December 21, 2008
  • 16 replies
  • Is there anyone else in hell right now because of the death of their preemie....One that was getting better and lived for a while...one that you got to know and love more then you could have imagined ...

NICU baby won't bottle feed - sleeps through feedings! HELP, need advice!!

HannahsMama
  • By HannahsMama · New reply December 20, 2008
  • 16 replies
  • Ethan was born a week ago at 35 weeks - barely preterm, but he was definitely not ready to come out this early. NICU neonatologists say he is "high tone" - muscles are clenched and he won't relax them ...

Please Pray for this family UPDATE

drakesmom
  • By drakesmom · New reply December 19, 2008
  • 7 replies
  • I am not sure if anyone on here is familiar with Kayleigh's story or not but her and her family have been thru alot and really need all the prayers they can get right now. From early in the pregnancy ...

NICU Social Worker- Ideas wanted!

dmnicu
  • By dmnicu · New reply December 17, 2008
  • 21 replies
  • I am the social worker for a level 3 NICU in Atlanta. I'm in the process of starting a support group for our mothers and was hoping to receive from feedback about what you think would be helpful to address ...

Vocal Cord Paralyzed following PDA Ligation

FratTwinz
  • By FratTwinz · New reply December 17, 2008
  • 3 replies
  • Hello all - I've recently found out that one of my twin's vocal cord has been paralyzed, following his PDA ligation. His actual age is 3 and a half months (corrected age is 10 days) - born at 26 6/7 weeks ...

MRSA False Positive

joyjoyjoy
  • By joyjoyjoy · New reply December 16, 2008
  • 7 replies
  • My son was in the NICU for 3 1/2 months. While we were there he contracted 2 blood infections and a false positive for MRSA. What I started to realize towards the end of our hospital stay was that the ...

Baby in the NICU

Crissey929
  • By Crissey929 · New reply December 14, 2008
  • 18 replies
  • I had my baby on October 8, 2008 at 32 weeks after being in the hospital for 3 weeks with severe preclampsia. Ever since I came home I feel like all me and my husband do is argue. I don't even know what ...

HONOR ALL OF OUR ANGELS BY LIGHTING A CANDLE!!!!

AlayahsMom
  • By AlayahsMom · New reply December 11, 2008
  • 11 replies
  • Held annually the second Sunday in December, this year December 14, 2008, The Compassionate Friends Worldwide Candle Lighting unites family and friends around the globe as they light candles for one hour ...

NICU Stay.. need opinion

prajitmom
  • By prajitmom · New reply December 5, 2008
  • 7 replies
  • Hi, I want to share story of our son. Sorry, it is a bit long but I thought I would share what we have gone through. He was born at 31 wks (now 42 wks) and below is the history of the events and how they ...

Double Dose Hep B vaccine to a preemie ?

alinanjeff
  • By alinanjeff · New reply December 2, 2008
  • 5 replies
  • The nicu today let us know today that they screwed up and gave our now 36/4 preemie 2 hep. B vaccines....thoughts? I dont understand why they were in such a rush to give him these couldnt they have waited ...

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