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In the NICU/PICU

The NICU/PICU is your introduction to the world of prematurity. It is a stressful and uncertain time and having resources and a community in place to help you through the experience can be your greatest comfort.

NICU Etiquette

Mouseteeth
  • By Mouseteeth · New reply yesterday at 11:19 pm
  • 11 replies
  • My husband and I are new parents to a baby born at 29 weeks gestation. He is still on an open bed, so we aren't able to hold him yet. How long should we stay in the NICU during visiting hours? My husband ...

The Smell of Rain story

AnabellasMommy
  • By AnabellasMommy · New reply yesterday at 10:11 pm
  • 9 replies
  • A week after my 1lb, 12oz baby girl was born, I was sent a "forward" email that contained a story. As I read it, I started to get angry... 'How could someone send this to me right now?!'... but as I got ...

Leval 4 bilateral brain bleed (both sides)

ndskin77
  • By ndskin77 · New reply November 19, 2009
  • 28 replies
  • I had my identical twin boys on october 30,2009 @ 25 wks. At 20 wks we had the Twin To Twin Surgery (they survived). Twin A benjamin has a bilateral leval 4 brain bleed Dr.'s say he will he will appear ...

Nissen surgery and still reflux?

Hokari
  • By Hokari · New reply November 17, 2009
  • 3 replies
  • My LO (7/4 months) had the G-tube and nissen operation about 3 weeks ago. Everything went fine and for 2 weeks his reflux was not existent, his oxygen requirement improved so much (he is still on CPAP ...

EBM/pumping question for IUGR baby not gaining weight

Bethanjones
  • By Bethanjones · New reply November 16, 2009
  • 4 replies
  • Hi, Our son, Zak, was born by emergency C-section on 31st October when my pre-eclampsia got severe. He was 36 weeks exactly, but weighed 3lb15 as he had severe IUGR. Since then he has been diagnosed with ...

Baby Makayla

slimfireandrea
  • By slimfireandrea · New reply November 14, 2009
  • 16 replies
  • My daughter was born Oct.29,2009 due to me having pre e and her having iugr. When she was born she weight 2 pound 4 oz. now she weights 2 pound 10 oz. the doctors are saying that she doesnt have to be ...

how long is too long

maaucha
  • By maaucha · New reply November 13, 2009
  • 8 replies
  • i had my little girl at 26 weeks, she has been on the ventilator for 4 months now. ok, im concerned if she has been there for too long. anyone with a similar condition out there ...

IUGR- Not Making Gains in Growth

oquinn27
  • By oquinn27 · New reply November 13, 2009
  • 5 replies
  • My son, Chase, was born IUGR at 28 weeks 4 days on September 30th. He weighed 1 lb 7 oz. Currently he weighs 2 lbs 10 oz. He's been on full feeds since about 5 days after birth. The nurses have been fortifying ...

How do I move on after my loss??

gracie28
  • By gracie28 · New reply November 13, 2009
  • 2 replies
  • I lost my little girl on August 13th, only 1 week after she was born. I find myself having alright days and really, really bad days in between. I don't know what to do....I miss Gracie soooo much. It ...

brain bleed and drinking from a bottle

Prayingforourxtwins
  • By Prayingforourxtwins · New reply November 13, 2009
  • 4 replies
  • I am a mother of twin boys (23 weekers). they both have a grade 2/3 and a 3/4 brain bleed. I'm curious if your micro preemie had a bleed like these and consequently had difficulties taking their feedings ...

grade 4 brain bleed

Joe742
  • By Joe742 · New reply November 12, 2009
  • 15 replies
  • ON OCT 15TH, MY WIFE GAVE BIRTH TO OUR SON, WHO WAS 2 MONTHS PREMATURE. AS IT WAS EXPLAINED TO US, WE WERE EXPECTED TO RIDE THE ROLLER COASTER. I AM FINDING THAT OUT NOW. SO FAR HE IS DOING GREAT, NO ...

update on my 23 weekers/ questions about future

Prayingforourxtwins
  • By Prayingforourxtwins · New reply November 12, 2009
  • 1 reply
  • I've posted a few discussions, but now i want to update you on what an awesome God we serve. My twins have been in the NICU for almost 3 months and have had a fairly smooth NICU ride. PDA surgery early ...

Huge Progress (knock on wood)

jonathan24weeker
  • By jonathan24weeker · New reply November 12, 2009
  • 7 replies
  • Jonathan has made huge progress the last five days. Since having the laser surgery on friday he has moved from the vent (for the surgery) back to CPAP and then to a nasal cannula on Sunday !! He is still ...

7 Months and Savana Still in the NICU!!!

14ozMiracle
  • By 14ozMiracle · New reply November 12, 2009
  • 17 replies
  • I haven't updated in a while so I thought I'd let you all know about Savana's progress. Well as you read in the title she is still in the NICU and she is currently 7 months old going on 8 months. She ...

When did your 26 weeker go off all oxygen support?

happymama
  • By happymama · New reply November 12, 2009
  • 17 replies
  • We'll be 40 weeks Thursday and my little guy is getting just .05 liters/minute but really needs it, especially for feeds. So I expect he will come home on oxygen. Sister is off currently but may do better ...

my baby was born at 26 weeks and 5 days

Silvia429
  • By Silvia429 · New reply November 10, 2009
  • 16 replies
  • My little angel was born thurday... 11/05/09 he was 2 pounds. It the most hard thing am going thru. I would love to hear storys of people that have gone thru the same and how the babys are now and how ...

Very rocky road after PDA Ligation

MyLittleBoo
  • By MyLittleBoo · New reply November 9, 2009
  • 7 replies
  • Hello Everyone, My little boo, Isaac, is really struggling right now. He had his pda ligation surgery on Wednesday and since then he has had nothing but bradys and apnea spells. Before the surgery he ...

Reconnection Surgery (ostomy)

sherash
  • By sherash · New reply November 8, 2009
  • 1 reply
  • My daughter who was born in 26 weeks weighing 1lb.90z way back in Aug.15th and she was due the third week of this month, is still fighting her way in the NICU. She went through a lot for the last two ...

low milk supply

amimill29
  • By amimill29 · New reply November 7, 2009
  • 11 replies
  • I had my daughter at 29 weeks. The first couple of weeks i was producing a ton of milk. Now shes almost 5 weeks old and im barely producing any milk. ive been trying to take fenugreek and drink mothers ...

Carissa day 1 post-op

mom2gyrls
  • By mom2gyrls · New reply November 7, 2009
  • 3 replies
  • My Carissa was born @ 23wks and is now 5 1/2 months old 1 1/2 m corrected. We have been in the NICU since 5/31/09 After being transfered to a new hospital almost 1month ago it was discovered that her ...

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