The NICU/PICU is your introduction to the world of prematurity. It is a stressful and uncertain time and having resources and a community in place to help you through the experience can be your greatest comfort.


Preemie Grunting, Moaning, pushing with hands

  • By skhan011 · New reply 4:38 am
  • 6 replies
  • Hi, I have a preemie who is 36 weeks in two days. She non stops grunts, moans, twists turns fights with hands when she is about to fall asleep and also when she is tube feeding. these gestures and signs ...

Micropreemie moms

  • By Hopesmommy2014 · New reply yesterday at 6:49 pm
  • 26 replies
  • My daughter was born at 23 weeks and 2 day, they told me to never compare other babies with mine, but would anyone with 23 weekers give me some in site on your baby and how long they stayed in the hospital ...

Breastfeeding preemie. What to expect?

  • By Dupree85 · New reply yesterday at 1:44 pm
  • 8 replies
  • My preemie will start breastfeeding next week. Would should I expect ...

Has anyone dealt with negative reactions due to recent immunizations.

  • By Dupree85 · New reply April 22, 2014
  • 8 replies
  • My 25 weeker is now 34 weeks and she recently received her immunizations. The day she received her immunizations she had two bradys episodes and desated 10 times. She has not had any brady's episodes ...

Preemie & Formula

  • By skhan011 · New reply April 22, 2014
  • 9 replies
  • Hi, My almost 35 week old baby girl has started on formula for past several days called Pre Nan in europe. She was born at 31.2 and has been on donors BM and some of my BM that i could pump which is almost ...

NICU stay is overwhelming me...

  • By MommieX3 · New reply April 18, 2014
  • 12 replies
  • Hello..I have written before about the trials of my Ladybug..well since her transfer to another hospital (2hrs away) things have not be going the best.. She was transferred the end of February and has ...

Caffeine Citrate side effects??

  • By skhan011 · New reply April 12, 2014
  • 2 replies
  • Hi, My preemie of 31.2 weeks and 20 days old now has been breathing on her own and was put on caffeine citrate 6 days ago for oxygen desats. I would like to know if your preemie exprienced any side effects ...

Preemie night terrors?

  • By skhan011 · New reply April 10, 2014
  • 3 replies
  • Hi, I am a mother to 31.2 week old premature baby girl. She is today 20 days old and is in stable condition except feeding issues and some desats. She often sleeps and is awake with her eyes half open ...

Complication after my preemies ostomy take down surgery

  • By mommyof23weeker · New reply April 9, 2014
  • 7 replies
  • My baby was born at 23 weeks 4 days gestation. He developed NEC at about three weeks old. He had to have 10cm of necrotic bowel removed back in January and they gave him a loop ilostomy at the time of ...

My son born 30wks + 1day on a ventilator for 2 weeks and counting

  • By Tiff_marie · New reply April 8, 2014
  • 3 replies
  • How do you handle the ups and downs with a child on a ventilator? His right lung is very cloudy with fluid and if it doesnt improve soon they want to start steroids... Has anyone had a similar experience ...

NICU Journey 2nd time

  • By Zavi0208 · New reply April 7, 2014
  • 4 replies
  • My 1st son was born at 29 weeks 2 lbs 15 oz. You would think I would know the ups and downs of having my baby in the NICU. I find it, alot harder this time. My 2nd son was born at 30 weeks, 2 lbs 7 oz ...

28 weeker boy

  • By terri5173 · New reply April 7, 2014
  • 3 replies
  • My son born 12/31/14 is still in NICU without knowing what is going on from one day to the next. He has PDA litigation, kidney issues, High blood pressure. He was intubated 3 times and now after the last ...

Reflux baby

  • By Thabi · New reply April 6, 2014
  • 13 replies
  • Hi ladies My preemie is 3months 2weeks in NICU because since she was born she is vomiting a lot, the doctors tried everythingevry test but they couldn't found out what causing the vomit, only after 3 ...

When are a preemies retinas fully developed on average??

  • By smashieebaby · New reply April 2, 2014
  • 6 replies
  • Hello, I had my daughter at 28 weeks and 6 days, I had severe preclampsia and had to have a emergency c-section. She is now 33 weeks and 3 days, she is 34 days old. She had her first eye exam last week ...

Sewing for Preemies

  • By Aliasmom · New reply March 31, 2014
  • 8 replies
  • Our sewing group is up and running. We meet the 2nd and 4th Thursday of the month. We have gotten a very good turn out and are getting more organized each time we get together. If anyone is interested ...

27 W IUGR , Synagis shot still on CPAP?!

  • By scastro12 · New reply March 27, 2014
  • 11 replies
  • PLEASE I NEED SOME ADVICE. My 27w IUGT baby, still on CPAP. The doctors just told me that they want to give her now the SYNAGIS shot. I dont feel confortable was hoping at least she gets better to start ...

Severe cystic bpd

  • By Efink520 · New reply March 23, 2014
  • 3 replies
  • I had twins born at 25 weeks. They are now 36 weeks gestation. My daughter is doing well but my son is having a struggle. He was diagnosed with severe cystic bpd. He is still on a vent at 52% o2 and peep ...


  • By crystlmw9 · New reply March 23, 2014
  • 1 reply
  • Need encouragement/suggestions/advice!!! My daughter has been on Cpap for over a month now and her highest rate has been about 45% on a peep of 6. Today she began requiring 80 -90%. The doctor has ran ...

Twins possible trachs

  • By NicuMom · New reply March 19, 2014
  • 15 replies
  • Hi! I have been blessed with boy/girl twins that were born at 25 wks. Today they are 4mths old...3 wks adjusted and we are still in the nicu with airway issues. Both babies are intubated and have not ...


  • By Scole1406 · New reply March 17, 2014
  • 9 replies
  • Our baby had a EEG brain test this week. ..results said low brain activity ...what does that mean? he was born at 28 weeks and now is 34 weeks...Still having breathing problems,and just starting to move ...

Things you can do

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Preemie links and resources

Narratives from the NICU -- Read the special report

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