At home (years 1-5)

Connect with others raising preemies in the at-home years and share information and support.

Discussions

Pale optic nerve

• By jen_and_twins · New reply 8:05 am
• 12 replies
• My ex 28 weeker has always had issues with his eyes but at 1.5 years we thought they had resolved. Then over the last couple of months his left eye became lazy (it was his right eye previously). We had ...

stool issues with toddler

• By NmA · New reply yesterday at 3:56 am
• 1 reply
• Need some help pls. My 19 mth toddler has several changes in patterns of stool. He will go from very dry constipation pellets to loose sticky stools that saturate the diaper and then something normal ...

What age did he walk?

• By rs1980 · New reply May 16, 2013
• 12 replies
• Hi all. My 14 month old son (corrected age) is still not walking. He is cruising very well and has been walking holding on to furniture since the last month or so. I know I shouldn't worry but what age ...

Gassy baby!!!

• By Slbb · New reply May 13, 2013
• 7 replies
• My twin boys were born at 32 weeks and stayed in the NICU 55 days. They are home now and their feedings are alternating breastmilk with Enfacare formula. I have to supplement because I don't get enough ...

Language Delay

• By Beth3010 · New reply May 12, 2013
• 18 replies
• Hi ladies, Jack is 18 months actual 16 months corrected. He still does not have any definite words. He makes sounds of animals and letter sounds. He points and gestures but still wont talk. He is also ...

Miracles do happen!

• By jen_and_twins · New reply May 11, 2013
• 5 replies
• I just wanted to share some photos and a video of my beautiful twin boys that were never supposed to make it.. Born 28w3d jaxon was 1446g and my little Levi was just 616g.. They are now 27 months, almost ...

Recommendations for inclined bassinet

• By MoiraB · New reply May 10, 2013
• 7 replies
• Hi All, Thanks for taking the time to read this. Our son, born at 25 weeks, is now 41 weeks and hopefully coming home from the NICU soon. He has significant reflux and is normally held for a while after ...

Link between prematurity and Autism??

• By mommamichelle · New reply May 9, 2013
• 17 replies
• Hi Everyone! I am a mother to a beautiful 27 weeker who is now 10 month adjusted and doing so well! He had littlle issues in the NICU, just wanted to go at his own pace and was not having it any other ...

Please comment if your prem was IUGR under 800g at birth and is now 2 years

• By jen_and_twins · New reply May 4, 2013
• 22 replies
• My little Levi is 26 months. He is 18.5lbs (8.4kg) born 616g.. I'm just wanting to know if he should have caught up in size more by now but have nothing to compare him to as his twin was not IUGR... So ...

Help choosing Baptism hymns

• By Lilsma · New reply May 2, 2013
• 1 reply
• My 25 week born daughter is coming up 9 months old and it is soon her Baptism. She's doing amazingly well with remarkably few minor health issues and a delightful personality so we have everything to ...

Lower than normal pulse ox?????

• By Jakeysmama0808 · New reply April 23, 2013
• 4 replies
• My son is 14 months actual 12 months adjusted. He was born @ 32 weeks. I have IC but the actually "cause" of his premature birth was group b strep. It got into my uterus and his placenta. It made him ...

We made it 1 year!

• By TwinMomSunny · New reply April 23, 2013
• 5 replies
• My twin girls celebrated their first birthday yesterday. They were born at 28 weeks 1 day (after my water broke at 25 weeks and I spent 3 weeks on hospital bed rest). Lily was 2 lb 3 oz and Claire was ...

Nervous Preemie Parent- NEED advice/personal experiences, PLEASE!!

• By MaiTwins · New reply April 22, 2013
• 40 replies
• Nervous Preemie Parent here- NEED ADVICE & PERSONAL EXPERIENCES: Hi everyone. I apologize in advance for the length, but this is a loving community that helps each other out, and I really need advice ...

current condition at 5months corrected born at 27wks,830g

• By axelmisulu · Posted April 21, 2013
• 0 replies
• now 5 months corrected;65cm on h;41cm hc;7kg ;on breast+formula;developing normaly ...

Texas Support groupt

• By Aliasmom · New reply April 20, 2013
• 1 reply
• We are having a support group that meets up once a month. It is for current and former parents with children in the NICU. We are also working on a sewing group to help make blankets, hats, preemie clothes ...

3 year olds not growing in weight, also less than 3 % in height

• By jteacher · New reply April 18, 2013
• 5 replies
• I went for our boys' 3 year old checkup today - everything looks great, and honestly they seem to be above average in most areas. However... they are still so small! They have both gained less than 3 ...

Illeostomy reversal at newborn - what will happen

• By AmiAmitay · New reply April 18, 2013
• 5 replies
• Hi all, My daughter was delivered at week 36+1 (that was not the problem) after having NEC (volvulus that occurred pre-labor, almost never happens). The doctors delivered her and at the age of 2 hours ...

Life with part of colon and/or IC valve missing

• By ljlou13 · Posted April 16, 2013
• 0 replies
• My son lost 1/3 of his colon as well as IC valve due to surgical NEC. He has most of his small intestine and has had no trouble gaining weight thus far (packs on about half a pound per week). He will ...

Sleep training / sleeping through the night

• By k123q · New reply April 15, 2013
• 8 replies
• Hello moms , I have recently been trying to sleep train my daughter. Our routine for a wind down is bath cuddle bottle sleep sheep put her down . Recently she won't go down with out a fight and won't ...

Illeostomy reversal

• By AmiAmitay · Posted April 15, 2013
• 0 replies
• Hi all, Just posted this on another forum and was suggested to post it in an additional group.. My daughter was delivered at week 36+1 (that was not the problem) after having NEC (volvulus that occurred ...

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