At home (years 1-5)

Connect with others raising preemies in the at-home years and share information and support.



  • By blankenship5214 · New reply 11:46 am
  • 5 replies
  • Hi all, possible big move in our future at the end of the summer to a suburb of Las Vegas. Looking for recommendations on hospitals, drs- and what specialty you see them for, groups, programs, anything ...

Former 28 wkr twin mom in need of milestone experiences, please!

  • By Marisadj · New reply yesterday at 3:04 pm
  • 8 replies
  • Hi all - I'm interested in hearing your experiences with reaching milestones. The real life stories are always so helpful. My 28 weeker twins are almost 10 mo (7 adj) and sitting (!!) but not great on ...

Wondering if I should be concerned

  • By jackie711 · New reply April 14, 2014
  • 6 replies
  • My son was born at 31 but developmentally and physically measuring at 26 weeks. We have guarded as much as possible from sickness, germs etc. in the process unintentionally kept him from kids around same ...

20 months now

  • By Carmelkisses · New reply April 10, 2014
  • 8 replies
  • I know all kids are different but my son is very active he started walking and talking earlier than normal preemie babies. Last month some time he stop repeating ppl. Now he barely talk but still is very ...

Need School Choices - Kindergarten NYC

  • By MyLittleBoo · New reply April 10, 2014
  • 4 replies
  • Greetings Everyone, My son is turning five in August and will be entering kindergarten. I live in Harlem NY and I'm trying to find a really good program for my son. He was tested and his "IQ" score is ...

Question on 31 wk B/G Preemies now one

  • By Jillbug32 · New reply April 8, 2014
  • 7 replies
  • I have B/G twins that were born at 31.5 weeks that are now 12.5 months adjusted... My son was 3.8 lbs and my daughter Jillian was 4.5 lbs... They both were in the NICU for about 30 days and their stay ...

Potty Training and Hypospadias

  • By furthurfar · New reply April 5, 2014
  • 7 replies
  • My son, Jax, was a 23 weeker. He's now 20 months and doing well. He was born with severe hypospadias. It was so severe, we didn't know for sure if he was a boy or a girl when he was born. Luckily chromosome ...

My miracle baby

  • By elycsa13 · New reply March 31, 2014
  • 6 replies
  • My son Davidson just turned 2yrs old on Tuesday! When he was born he only weighted 1lb 6.9oz, 11.5 in long! I was only 23weeks pregnant when I had him! He has been though more than any baby should, but ...

Our 27W5D preemie twins are now 3

  • By sirrobert · New reply March 30, 2014
  • 7 replies
  • Hey guys, 'ourlittlebigman729's post showing her amazing child gave me the idea that I should post some pics of our little guys - not to brag as a proud parent (which of course I am) but just to let those ...

V/P shunt malfunction

  • By PreemieMommy13 · New reply March 16, 2014
  • 9 replies
  • My son (6.5 months actual; 3.5 months adjusted) had a grade III brain bleed soon after birth that resulted in hydrocephalus, for which he got a V/P shunt back in November. Early Saturday morning, he was ...

Just venting

  • By Austingurl · New reply March 16, 2014
  • 9 replies
  • Ugh, I am so tired of all the specialists and drs. I am tired of evaluating my own child all the time. This is not how I expected being a mommy to be. My twins were born at 23 weeks. My son didn't make ...

Play group in Sacramento

  • By dagyanna · Posted March 15, 2014
  • 0 replies
  • Hi all, I've been looking for a play group for my daughter for the last year or so and haven't had any luck. every group I've found meets during the day while I'm at work :( and I am reluctant to enroll ...


  • By LisKev · New reply March 15, 2014
  • 14 replies
  • My 2year old was a micro preemie at birth, one lb and nine oz.... He is non verbal, learning new words everyday... My problem is he is having some terrible tantrums... Pulling sitters hair, biting and ...

Let's Talk Poop

  • By LittleMans_Mom · New reply March 15, 2014
  • 4 replies
  • Hello Mamas! My 33 weeker is now almost 2 years old...I can't believe how fast time has gone! My issue is this: my son is compeletly on solid food and has been since 18 months actual (ended last bottle ...

20 months and MASSIVE appetite

  • By Seabees · New reply March 15, 2014
  • 3 replies
  • Has anyone else experienced their preemie having a massive appetite at this stage? Our little guy is a 26-weeker and is 20mos/17 corrected, weighs about 22-23 lbs. He's gone through growth spurts before ...

16 month preemie ( born 30 weeks)

  • By trose44039 · New reply March 14, 2014
  • 3 replies
  • Does anyone know when the concern for a preemie born at 30 weeks not walking an dnot talking is ...

I've got a cold-how to handle???

  • By roar2013 · New reply March 13, 2014
  • 13 replies
  • So I have come down with a cold that somebody brought to the office. I have been gurgling with salt water, taking vitamins, drinking fluids, doing a nasal rinse and trying to rest so I can fight this ...

Help with feeding issues

  • By Violin674 · New reply March 12, 2014
  • 1 reply
  • Just a question for everyone out there who has dealt with feeding issues. Since starting my former 34 weeker (now 2) on solids, there have been issues. She was severely constipated after starting solids ...

Zakhi in daycare

  • By zakhimmy · New reply March 1, 2014
  • 2 replies
  • Zakhi started daycare last Thursday it was one of the best decisions I have made. From Zakhi being in daycare it started to stimulate his brain I can teach him but so much at home. He does very well in ...

Zakhi in daycare

  • By zakhimmy · Posted February 27, 2014
  • 0 replies
  • Zakhi started daycare last Thursday it was one of the best decisions I have made. From Zakhi being in daycare it started to stimulate his brain I can teach him but so much at home. He does very well in ...

Things you can do

Discussion topics

Preemie links and resources

Narratives from the NICU -- Read the special report

Community leaders