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Scheduled Maintenance of Inspire 5/30 2-3am Eastern Time

TeamInspire
  • By TeamInspire · Posted yesterday at 11:51 am
  • Journal · 0 replies
  • All, We are planning an outage of the Inspire.com website on Saturday, May 30th at 2-3 a.m, Eastern for system maintenance. The site will not be available for some or all of this window. Please let us ...

nitric oxide? ????

lawlessfaith
  • By lawlessfaith · Posted yesterday at 7:09 am
  • Discussion in In the NICU/PICU · 4 replies
  • Kayson has had a very bad day and doctors are telling us he is starting over. He is back on nitrous. They told his mom that it's like he was just born again. At birth he was given less than 20%survival ...

No more NICU

Momma_Sandra
  • By Momma_Sandra · Posted May 28, 2015
  • Journal · 10 replies
  • I've been away for a bit due to my sons "home arrival" on April 1, 2015. He came home on oxygen. He's been growing each day and is looking better and more handsome each day. He's such a happy baby BUT ...

giving hope

jamie-lee
  • By jamie-lee · Posted May 27, 2015
  • Discussion in At home (years 1-5) · 7 replies
  • Its been a while since i was on here however after reafing a few recent discussions on here from parents currently experiencing the nicu stay i feel i would like to give an update on my sons story, jack ...

Tube-free child doesn't feel hunger/fullness

logansmommy12
  • By logansmommy12 · Posted May 27, 2015
  • Discussion in Preemies with feeding issues · 10 replies
  • My son has had his gtube for nearly 3 years (he's 4 now). He is now at the point where he can be tube free (yay!). He has not had anything via tube for almost a month. My concern is that he literally ...

Breathing and movement monitors

SophiaDoga
  • By SophiaDoga · Posted May 26, 2015
  • Discussion in Open discussion · 7 replies
  • Hello everyone We are about to be discharged from our NICU after 119 days on this Saturday coming :)). We were told by doctors and NICU nurses that it is advisable to get a movement and breathing monitors ...

anybody in Bangalore(India)

priya_mommy_of_2
  • By priya_mommy_of_2 · Posted May 25, 2015
  • Discussion in Open discussion · 1 reply
  • Dear friends, Is anybody out here from Bangalore(India)? I am looking for an occupational therapist/ aqua therapist/ physiotherapist in Bangalore. Can somebody please refer a good one? It will be really ...

Sophia Doga physiotherapy in NICU

SophiaDoga
  • By SophiaDoga · Posted May 24, 2015
  • Discussion in Open discussion · 0 replies
  • My daughter's name is Sophia Doga.. Sophia is getting some physiotherapy whilst still in incubator due to diffuse brain atrophy.. I would be grateful for any information please ...

procardia started at 25 weeks still having contractions? advice please :)

AnabellenCaleb
  • By AnabellenCaleb · Posted May 23, 2015
  • Discussion in Open discussion · 3 replies
  • Ok, I am currently 27 weeks pregnant w a baby girl. I had a placenta abruption with my son which caused PROM which resulted in a emergency c section at 31 weeks. This pregnancy I have a partial placenta ...

Preemie with a colostomy bag

MarBear2362
  • By MarBear2362 · Posted May 23, 2015
  • Journal · 3 replies
  • Hello. My little girl Alice has had a colostomy bag for a little over a week now and we are having an extremely difficult time getting her colostomy bag to stay on her. She is 6 weeks old and is very ...

TAC Cerclage

Aksweetheartie
  • By Aksweetheartie · Posted May 23, 2015
  • Discussion in Open discussion · 6 replies
  • please I need a lot of advise and comfort as I just lost my babies at 15 weeks on Wednesday even after a transvaginal cerclage at 12 weeks. This is the fourth miscarriage and am interested in a TAC placement ...

Introducing Myself

SissyAndRosalie
  • By SissyAndRosalie · Posted May 23, 2015
  • Discussion in Introduce your very important preemie (VIP) · 2 replies
  • Hello everyone. Im Sistine (I prefer to be called Sissy) and on Tuesday I had my beautiful preemie girl. She was 2.8 pounds and was 15 inches long. Her name is Rosalie Fawn. Today, she is 4 days old and ...

Born in Hanford, CA; 1984, Jan 29th; 25wk preemie

Whiticanmommy3
  • By Whiticanmommy3 · Posted May 23, 2015
  • Discussion in Adult preemies connect · 2 replies · Photos
  • Wanted to see if there was any other adult preemies out there. And see how life's are going as we getting older? I was determined to be about 25 weeks gestational age, my approximately weight of 660 grams ...

Troubles pooping: 24 wkr after bowel perforation

HaydensMomma
  • By HaydensMomma · Posted May 23, 2015
  • Discussion in Preemies with feeding issues · 1 reply
  • Hello, My son was a 24 week preemie. He had a bowel perforation a week after his birth and had a ostomy for 2.5 months. He was finally put back together in February and he had issues with distention and ...

Dysphagia Outcomes

sunnysb18
  • By sunnysb18 · Posted May 22, 2015
  • Discussion in Preemies with feeding issues · 1 reply
  • Hi, I am the father of twins born @ 30 weeks and 4 days. One of my babies had a relatively good stay at the NICU without a lot of support needed other than CPAP and then nasal canola for 6-7 days. He ...

Parainfluenza Virus

sonnywonny21
  • By sonnywonny21 · Posted May 22, 2015
  • Discussion in In the NICU/PICU · 0 replies
  • Well my little sonny wonny is 40 weeks gest today. yay! Bad news is he had some reflux so he always had a gargley noise since he was 34 weeks, but yesterday he had two apnea spells, so they ran a respiratory ...

how did you financially do it when baby came home?

gabriel2780
  • By gabriel2780 · Posted May 21, 2015
  • Discussion in Working preemie moms · 7 replies
  • We get 8 weeks post op, 6 weeks PFL and nothing after that? That means I have to consider a nanny or daycare while baby is still small, at risk, and requires special attention. I want to stay home for ...

Psycological help for mom

Dmitry1979
  • By Dmitry1979 · Posted May 21, 2015
  • Discussion in Adult preemies connect · 1 reply
  • Hello, everybody! My name is Dmitry - we are starting a preemie charity in Russia. And the questuion taht I have for all: What is the best way to help a mother in the hospital? Psycologically? Any - best ...

babygirl

aubriebralin
  • By aubriebralin · Posted May 20, 2015
  • Journal · 8 replies · Photos
  • On may 7 I lost my first child due to placenta abruption. That morning I woke up feeling fine but around 12 noon I started having dizziness and a headache. On may 9 I buried her on her father's birthday ...

Bowel obstruction surgery

shamrocksmommy
  • By shamrocksmommy · Posted May 20, 2015
  • Discussion in In the NICU/PICU · 0 replies
  • Today my son is 7 weeks old & he will be having Bowel Obstruction surgery. I'm such a nervous wreck. Has anyone had this surgery? Any pros & cons ...

Things you can do

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Preemie links and resources


Narratives from the NICU -- Read the special report

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