Journals

ANYONE ELSE EVER BEEN STUCK WITH THEIR BABY/BABIES AT A NICU?!?!?

stephruybal93
  • By stephruybal93 · Posted May 23, 2013
  • 7 replies
  • My daughter will be 6 weeks on monday. She and her sister were born 10 weeks prematurely... and unfortunately one passed away... The issue im having, well she's having is getting off of her low flow oxygen ...

day 1 of my time with dylan

Ojay49
  • By Ojay49 · Posted May 21, 2013
  • 1 reply
  • well today was a good day at work some stress but not as bad as other days, i feel some what lonely as i see all this parents comforting there new borns and few yr olds, and i hear all my co-workers talk ...

My water broke 24week 6 days- bed resting

BooBoo2013
  • By BooBoo2013 · Posted May 21, 2013
  • 1 reply
  • My water broke 24weeks6days and I'm currently in the hospital and bed resting. It's now in the week of 26. Since I'm hospitalized, I have a little fever always around 37C (around 99F) but stable. My infection ...

Trying Again

ps91angel
  • By ps91angel · Posted May 20, 2013
  • 10 replies
  • So here we are 7months later. Trying again for "baby #2" it is exciting but we are both worried and scared. I'm still on BP pills. I could not get off them with out having high BP. Dr left me on 1 of ...

Naomi Grace"Little Bit"

ps91angel
  • By ps91angel · Posted May 20, 2013
  • 7 replies
  • Naomi's Story starts at 8 weeks gestation. When I found out I had High BP. I was put on 2 BP meds and monitored closely. We were hospitalized at 24 weeks and again at 28 weeks. I had her at 28 weeks she ...

7 months and blessed

jacemommy
  • By jacemommy · Posted May 19, 2013
  • 0 replies
  • my son is 7 months old now almost 5 months adj hes a former 28 weeks he does mainly everything a full term 7 month old does beside sit up by himself his drs compare him to other 28 weeker boys and compare ...

new and confused!

laurynsmommie
  • By laurynsmommie · Posted May 13, 2013
  • 10 replies
  • Hello. I just gave birth to a 32 weeker on wednesday. She is doing fairly wellso far, gradually taking in more feedings and has moved to only 21% oxygen. Shevis expected to stay in nicu until early july ...

update iugr !!!!

andy13
  • By andy13 · Posted May 10, 2013
  • 3 replies
  • Hi guys I have spoke to use all before about my wife who has iugr. My wife had her growth scan today and we thought it was going to be good news but we were wring once again another iugr baby she is getting ...

Hi Everyone! Introduction of our family :)

mommamichelle
  • By mommamichelle · Posted May 8, 2013
  • 8 replies
  • Hello Inspire! I have not had a chance to formally introduce myself so I thought I would post this slideshow about our preemie and his first year! I look forward to being a part of this group to gain ...

A different outcome

cheryl888
  • By cheryl888 · Posted May 2, 2013
  • 9 replies
  • My son was born at 34 weeks, and I was a disaster. We had a rough NICU stay, but he came home at 37 weeks. I was active on the internet, trying to learn everything I could. I was terrified to bring him ...

Looking for a breathing monitor for seizures

laniesmom
  • By laniesmom · Posted April 28, 2013
  • 15 replies
  • So, this last week was very scary. My daughter who is almost three had a seizure for over almost an hour and ended up on a ventilator. She is now home, breathing on her own again, and I am concerned that ...

Anthony Isaac Ogas

msmarir
  • By msmarir · Posted April 26, 2013
  • 5 replies
  • My son was born a preemie by 3 week. They let him go home a but he was back in the hospital in four day. He had developed PAH. A week later he is still in the hospital. We still do not now what the cause ...

Chelsea Flower Show and a garden inspired by premature babies

exlux
  • By exlux · Posted April 25, 2013
  • 3 replies
  • Here's a link to an article about a lovely garden inspired by a charity dedicated to supporting parents of premature babies at St George's Hospital. Just a wonderful place. http://tinyurl.com/dyknkgz ...

Oley Conference for People on Tube or IV Feeding

oleyfriends
  • By oleyfriends · Posted April 24, 2013
  • 5 replies
  • Oley Conference for People on Tube or IV Feeding You can’t afford to miss this chance to learn from the experts and meet others who live similarly. Cape Codder Resort & Spa Hyannis, Massachusetts June ...

A special online chat--Autism in a Social Society

John2
  • By John2 · Posted April 19, 2013
  • 0 replies
  • From: John Novack, communications director, Inspire Dear members, Inspire is proud to band with its partner, the Center for Autism & Related Disorders (CARD), and with Montefiore Medical Center in New ...

Earn $150 While Helping the Oley Foundation

oleyfriends
  • By oleyfriends · Posted April 17, 2013
  • 0 replies
  • We are looking for feedback from patients who have, or caregivers who are experienced in using, a low profile tube feeding device (sometimes called a button, MIC-KEY, or Mini-One) who live in the Boston ...

Overcoming Fear and Trauma Through EMDR

kaseymathews
  • By kaseymathews · Posted April 15, 2013
  • 0 replies
  • Do you or anyone you know find yourself overwhelmed by fear? If so, I wrote an article on EMDR therapy that you may find really helpful. It's posted today over on the Preemie Babies 101 Website. Please ...

New NICU support group Houston

Aliasmom
  • By Aliasmom · Posted April 14, 2013
  • 0 replies
  • I just started volunteering at a non profit preemieprints.org They offer NICU families a chance to get pictures of their newborn while in the NICU. They have volunteer photographers all over the country ...

B/G Twins born at 30 weeks 6 days

Ylimesnick
  • By Ylimesnick · Posted April 13, 2013
  • 3 replies
  • My husband and I have B/G twins born at 30 weeks 6 days on Jan. 2, 2013. Baby girl spent 47 days in NICU and is now home. She is healthy but may have anemia. More tests will be done in a couple of months ...

Thoughts

Alicesmommy87
  • By Alicesmommy87 · Posted April 13, 2013
  • 14 replies
  • Thinking about leaving inspire ...

Things you can do

Discussion topics

Preemie links and resources


Narratives from the NICU -- Read the special report

Community leaders