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We'll be 40 weeks Thursday and my little guy is getting just .05 liters/minute but really needs it, especially for feeds. So I expect he will come home on oxygen. Sister is off currently but may do better with some Os for her feeds. What's your experience been? Did you go home with Os and if so how long were they on? Thanks!
My daughter was also a 26 weeker and she was still on O2 after meeting all of the other criteria for going home so the doc was going to send her home on O2. The night before her discharge, she started to sat at 100 so they took it off and her sats never went back down. They did the car seat test that night and she was released the next day wothout O2! she was 39 weeks. It's almost like she knew it would be hard on us to deal with O2 at home so she got rid of it for us!
Will she have a little chat with my guys about being nice to mommy? :)
My 26 weeker came off O2 around 41-42 weeks. He was still in the NICU so he didn't come home with it. For a day or two we thought he might but he decided to finally be done with it after being so close to being done for a few weeks. He came home a week or two later.
My 26 weeker was discharged at 36 weeks and was on oxygen at home for 2 months. We live at a high altitude, over 7,000 feet elevation.
Our son was born 25 weeks 2 days.
High freq oscillator 6 days
Convention vent 6 days
CPAP 29 days
Cannula...until 4 months adjusted
Some kids need those extra oxygen molecules to stay healthy. His pulmonologist said it had to do with the lining of the lungs. For some kids, the lining is thicker than others, making it more difficult for the lungs to get the oxygen into the blood stream. As the kids grow, the lining thins out and then the conversion is easy and cannula no longer needed.
My 26 weeker is still on 02 at home. She's 4 1/2 months old (7 1/2 months). She's on .4 and we just got back from the respirologist who wants to keep her at .4 until she sees cardiology in January. He's doesn't want to wean her until he knows about how hard her heart is working to pump blood through (potential for pulmonary hypertension)... We'll go back to respirology after that result (appt for Feb.). So here I was thinking we'd be weaning and we're still stuck with these damn cylinders!! It's not so bad and is actually more comforting with her on 02.. especially when I'm sleeping as I know she's breathing well too.
both my twins were on oxygen forever in hospital, but my son stopped requiring it a month before discharge. my daughter needed it for a couple months when she first came home, but now only requires it if she gets sick.
Violet, born at 25 weeks was on the vent for 6 weeks, then high flow NC for 3 days, low-flow for about a week and then room air by 33 weeks gestation. I thought she would never come off the vent, but once she did it was all over. She hated the cannula and did not need it for long. However, she did need the laser surgery for ROP...go figure
Hi
Not to discourage you, my 28 weeker (with CLD and BPD) who is now a little over 10 months old is still on O2. 1/2 ltr at home.
It takes some getting used to but we manage.
We have her living quarters set up in the living room so she is in the middle of everything and involved with the family. She receives a lot of attention and is becoming very social.
We were attempting to ween her off but ran into FTT issues and had to back off until we get her weight under control.
Well, as you can probably tell, everybody's story is different. It will all depend on your baby. For us, Rainy was born at 26/5 weighing 1 lb 5.5 oz
She was allergic to surfectant, and coded
Put on oscillating vent for over 5 weeks
conventional vent 2 weeks
CPAP alternating with vent 2-3 weeks
cannula until 2 months adjusted
They were going to send her home w/o air, and after being off for two days, she started laboring, so she was put back on, and sent home with it. I was bummed about the adapting to more equipment at home, but very glad she had it. We had her large tank of air in the bedroom and a 7 foot tube. We basically lived in our bed for a while unless she went to a Drs appointment, which happened very frequently. We did take her on walks, and had no problems getting around with her travel pack of air. A bonus was that the tubes and tank and her two monitors kept people at a distance, and I believe that really helped her stay healthier. People have a tendency to run up to and get close to new babies.
Good luck to you.
Hello, Our 26 weeker was on the oxyegen cannula at home until 8 months adjusted when she was switched to just having oxygen at sleeping times. That last a couple of months.
But then 6 months after that she got RSV (in early September), 4 days in hospital with oxygen and then a week at home and then another week during sleep. The second winter we ended up keeping the oxygen tank, just in case, but did not ending up needing it again.
But this great blog is interesting. These kiddos are 5 years and do still get sick and need oxygen support. So it's very hard to predict!
http://micropreemietwins.blogspot.com/
Hi - my 26 week twins both went home without O2. One was on the vent for a week, one for a day. Then they were both on CPAP for about a month before going to a cannula. They were off the cannula before going home after a total of 10 weeks in the hospital.
Best wishes.
My twins were born at 29 weeks but she was low on amniotic fluid mid-pregnancy and then her sac leaked for at least the last 3 weeks of my pregnancy... so her lungs have got real issues. She was taken off the oscillating vent last week at 40 wk 5 days and is now on the conventional one. She's got CLD/BPD and is in her second NICU. It's been a long road so far and it's going to last a long time.
My 25 week 6 day twins B/G. my girl came off O2 at 37weeks and my boy was on O2 at home for 6 weeks which was 2 months old adjusted.
My 26 weeker went home with oxygen but wasn't on it very long and was on the lowest setting when he was on it. So, all together while being home on it was probably 3 weeks.
My 29 week twin girls were both on oxygen from the start. Lexie, baby b, needed a cpap and surfactant at first...on the cpap for 2-3 days then on a canulla. She came off her oxygen completely about 3-4 weeks before coming home. Our other daughtet, Lilah, needed just the canulla from the start but is now 44 weeks GA and still on oxygen. They came home 7-8 weeks ago and she has been on .2 since then. Three weeks ago the pulmanologist said we could start weaning her off of it. She can be off for 3 hrs a day but sometimes does more now that we have a pulse ox monitor to make sure her sats are up. We are also starting to wean the amount down. We go back to the pulm next week and I'm hoping out days if o2 will be over, maybe just o2 at night a little longer.
Hi
Our 28 weeker who is 11 months old now is still on O2 support at home. We have been able to tweek it down to 1/4 ltr, but she still needs that tiny little bit to keep her levels up.
You get used to it, and the line becomes second nature. We hardly ever trip over it any more!
We set up our little ones living quarters in the living room, so she is front and center for all the activity and is part of the family life.
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