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Unicornuate Uterus

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I'm hoping to connect with someone who might have gone through the same situation that I'm going through right now. I am currently 39 years old. I got pregnant for the first time in June of 2008 and at 26 and half weeks of pregnancy, at a routine doctor's visit, I was told that my son's heart had stopped beating. I was devistated beyond belief. The very next day I admitted into the hospital and they began to induce me so I could deliver my son. One day later, which actually felt like a week, I delivered my son on November 15, 2009. He was 13 inches long and approximately 2.5 lbs.....he was beautiful. My son was burried on November 20th, 2009. His death was believed to have been caused by a twisted cord.
Immediately after giving birth my heart rate began to slow down and breather was irregular....I couldn't deliver the placenta and shortly after........I passed out. At that point I really don't remember a thing. My husband said I was rushed into another room and I was gone for 45 minutes. An emergency D and C was proformed to remove the the placenta. I was told that I had almost died.
After two months of waiting to heal physically (mentally is an entirely a diffent story) we started trying again. After 4 months with no succes I went back to my OBGYN and requested that I be put on Clomid to speed up the process since I wasn't getting any younger. My doctor then recommended a procedure called a Hysterosalpingogram to make sure I didn't have any blockage or scar tissue from the emergency D and C procedure. It was after this test that I found out that I may have a unicornuate uterus. Two MRI's and a one Hyteroscopy later it was confirmed.....I had a unicornuate uterus. Both of my ovaries are functional, but my right horn is none functional. I'm shocked I held my son for 26 and half weeks since this abnormality has a high rate of premature deliveries.
Since then I've started to see a reproductive endocrinologist. My doctor suggests starting with IUI's instead of Clomid, for fear of multiple births, since my uterus will probably have a difficult time just holding one baby.
For a little over a year I have been on an emotional roller coaster and there are days when I don't even want to get out of bed. I am merely a shell of the women I once was. My sons death has changed me forever. My life is now consumed with doctors appointments.
Is there someone out there that understand what I'm going through? Is there a happy ending?

Explore topics in this discussion:

Unicornuate uterus Clomid Miscarriage Pregnancy

2 replies

Dear AnthonyJosephsMom,

I also saw your reply to my post, but will respond here in your own post.

I am so very sorry to hear that you lost your precious boy. I can only imagine the immense heartache and sadness you must feel on a daily basis. Having to say goodbye to your beautiful child must be hell on earth.

I hope you can feel hopeful at times as well. The fact that you got pregnant in the first place is, according to my doctor, a really good sign. In our case we would definitely have another extreme early birth. She knows this because my uterus was really stretched to the max and extremely small. In fact, she was surprised my son was a "big" as he was with 1 lbs 5 oz. This is not the case with every unicornuate uterus. The fact that you did not have any signs of labor at 26 weeks is really good. Mine started, in hindsight, around 18 weeks.

There is not that much known, as you probably have figured out by now. I do know that opinions vary greatly among Doctors, about being able to get pregnant and then of course being able to hold on to the pregnancy. Especially the latter seems to be pretty positive in your situation, your little guy was appr. 2.5 pounds, that is a really good weight. It must be so devastating that despite that he was not able to live his life here with you.

The most hopeful story to me was my mom's who also has a unicornuate uterus. She did have three miscarriages. However, this was before she was able to carry my sister to 36 weeks, and then myself to 39. She obviously did not have a problem getting pregnant (6 pregnancies total, first three miscarriages, then my sister, then a brother at 32 weeks who was born and died due to a completely unrelated syndrome, and then I was born).

I wish I could provide more support to you but do hope that knowing it is possible will provide you with some light. I wish you much strenght and love to handle the very challenging path you are on. Please feel free to contact me at any time if you have questions or concerns you would like to share (lijnsprenger@gmail.com). Unfortunately we're quite rare with our bodies.

Kathalijn

Hi. So sorry to read about your loss.

I also have a uterine anomaly, mine is Uterus Didelphys. Kind of like a double unicornuate uterus. The uterus is totally split in two, with two cervix, and both sides are half the size of a normal uterus. My left side is unable to conceive, but the right side is, and has done so. I have had one early stage miscarriage, and one successful pregnancy. My daughter (now 16 months) was born early at 30 weeks. My presumption is she ran out of room. She was in breech position, which is very common with UD, and I'd imagine unicornuate also, due to lack of room.

The fact that you have conceived is good. The unicornuate uterus may not have had any bearing on the outcome of your pregnancy, and shouldn't (assuming your cycles are all normal and you haven't any internal scarring) effect you conceiving again in the future.

I just wanted you to know it's not impossible.

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