I have been a member of this site for about 4 months now. I have found it so comforting to see success stories as well as advice to other worried parents. My daughter was born at 29 weeks and was doing very well until the week before she turned 1 month old. A blood clot was discovered as a result of her picc line. She was treated with an anticoagulant but with no success. She is now 4 months old and the journey with SVC syndrome has been tumultuous to say the least. In these 3 months she as defied many odds. This week we were presented with putting in a trach and possible feeding tube as she is still needing ventilation. Of course the doctors presented everything as a benefit for Jenay but I am not completely sold. Please provide me with advice from your experiences. This is one decision I don't want to make.